Jan. 24, 2023
Episode 41: Sarah Todd Hammer - A Model for Accessibility

Meet Sarah Todd Hammer! Sarah Todd is a 21 years old three-time published author, dancer, and speaker. In 2010, she acquired Acute Flaccid Myelitis (AFM), which left her paralyzed from the neck down. She regained the ability to walk but has paralysis in her arms and hands. Now, a junior in college, she is studying Psychology and Communication Studies, and she’s built a remarkable presence on social media with over 115,000 followers by educating others on disability and advocating for accessibility. Enjoy the listen!
Sarah Todd's Links:
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Jennifer Norman's Links:
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- Pinterest
- YouTube
- Medium
Thank you for being a Beautiful Human.
Transcript
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Hello Beautiful Humans.
Welcome to another episode of
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Role Models, Juicy Conversations
with Beautiful Humans.
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I'm Jennifer Norman, founder of
the Human Beauty Movement and
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your host.
This podcast thrives on your
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support, so if you like what you
hear, follow us, rate us, review
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00:00:21,640 --> 00:00:24,800
us, and share this episode with
everyone you know across your
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networks.
Today's juicy conversation is
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with an extraordinary gal who's
made it her life's work to
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educate on disability and
advocate for accessibility.
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Sarah Todd Hammer is a 21 year
old, three time published
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author, dancer and speaker.
In 2010 she acquired acute
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flaccid Myelitis AFM which left
her paralyzed from the neck
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down.
She regained the ability to
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walk, but she has been paralyzed
in her arms and hands.
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Now a junior in college, she's
studying psychology and
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communication studies, and she's
built a remarkable presence on
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social media, having over
115,000 followers across her
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platforms.
Welcome, Sarah Todd.
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Hi, Jennifer.
Thank you so much for having me.
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I am delighted to have you on as
a guest.
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You are what I consider a truly
beautiful human.
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So I want to hear all about
yourself, how you grew up and
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your family.
What was it like?
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I had a great growing up.
I've lived in Atlanta my whole
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life and I'm the youngest of
three kids, so I have two older
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brothers and then grow.
With my mom and my dad, and we
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have Havany's dog named Buddy.
So that was my family and I was
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always very close.
With my mom, I was put in ballet
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classes when I was three years
old because she wanted me to
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dance, because she loved it so
much when she was little.
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And that's how my love for
ballet grew.
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And that was something that my
mom and I enjoyed doing
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together.
And those are some of my fondest
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memories from when I was little.
So I had a great growing up with
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my family.
In Atlanta, we have that in
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common.
I started ballet and tap when I
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was four years old and I always
looked forward to the recital at
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the end where you get to get
into those, like adorable
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costumes and perform.
And everything.
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That's the best?
Absolutely.
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So now you were about 8 years
old and you were in your ballet
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class when you noticed that you
lost the use of your arms and
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your hands.
Can you tell us, take us back to
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that time about what it felt
like?
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What happened?
Yes.
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So I was 8 years old and I was
at.
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Ballet class.
I had ballet once a week, and I
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was super excited for that
particular class because we were
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trying on our recital costumes,
which as you just mentioned, was
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always super fun.
And we were going around the
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studio, kind of just jumping
around in our costumes, having
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fun.
I was doing leaps with one of my
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friends and then I noticed that
all of a sudden I had a really
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excruciating head and neck ache
and it got so bad to the point
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that I was crying, which was
really unlikely.
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Me and my mom was looking
through the window outside the
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studio to see what was going on,
and then she noticed that
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something didn't look right.
So we decided that I was just
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going to go home and rest for a
bit.
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So she comes in and gets me, and
I go outside the studio and I'm
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sitting on the bench trying to
put on my shoes to go outside.
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And I leaned down a bit to pull
up my tights and adjust to them.
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And then all of a sudden, my
arms and hands just stopped
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working.
And just like.
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Fell limp.
And so I turned to my mom and I
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told her that my arms didn't
work.
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And so she was obviously like,
OK, we're not going home.
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And the hospital at that point
was pretty far away.
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And it was about 4:00 PM in
afternoon, so there would have
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been a lot of traffic getting
there.
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So we went to the urgent care
facility that was about a 10
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minute drive away.
And by the time we got there,
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just about 10 minutes later, I
couldn't walk, even though I
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could still move my legs.
So things were progressing,
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really.
Fast.
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And we went inside.
My mom explained what was
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happening and they flew me by
helicopter to the hospital,
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which was a scary experience, of
course.
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And then I was in the emergency
room for six hours and I
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couldn't walk or sit up or move
my arms and hands.
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And the doctor gave me Motrin
for my neck pain, but he didn't
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think that anything was wrong.
And so, after being there for
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six hours, he told my parents to
bring me back in the morning if
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I wasn't better And then.
He sent me home and we went
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home.
And then the next morning I woke
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up and then couldn't move my
legs either.
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So I was completely paralyzed
from the neck down.
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And this was all within the span
of about 16 hours.
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So my mom called an ambulance
and then we went back to the
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very same hospital by ambulance
the next morning.
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And later that day I was
diagnosed with transverse
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myelitis, or TM.
At the time, AFM was not a known
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thing.
That term wasn't even coined in
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2010.
So I was not diagnosed with AFM,
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but I was re diagnosed with AFM
in 2018.
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And AFM and TM are pretty
similar.
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They're all kind of part of the
same group of neuroimmunological
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disorders.
So TM wasn't too far off of a
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diagnosis, but it was not what I
had.
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And so leading up until that day
that you all of a sudden started
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to feel either numbness or that
you couldn't move your hands and
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your arms properly, was there
any illness?
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Was there or anything that would
give you an indication that
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something could have been
happening or was it completely
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out of the blue?
It was completely out of the
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blue.
I didn't have any symptoms.
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I wasn't sick, I wasn't tired.
I didn't have any numbness or
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tingling.
It was just the headache came
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and then the arms and hands
stopped working and it was just,
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like, really quick.
So there was nothing out of the
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ordinary up until then.
Wow.
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I know how difficult that time
must have been for both you,
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your parents, your brothers,
everybody who loved you because
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the unknown is always difficult
to deal with.
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Sometimes when you get a
diagnosis and you're and you
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know about it ahead of time, if
there's a little bit of
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assurance, but the not knowing
how this happened and you start
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asking yourself a lot of
questions.
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There are a lot of, you know
reasons why people go through
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very, very hard times when you
know just like dealing with with
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a diagnosis like that after your
diagnosis.
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I know that you know you had
this experience, but what was it
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like?
And how long was it that you
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were feeling paralysis in your
arms and your legs?
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So I was in the intensive care
unit for 12 days after we went
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back to the hospital, and then I
was on the inpatient
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rehabilitation unit for about 5
weeks.
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And while I was in the ICU, I
had plasmapheresis treatment
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done which helped with regaining
my leg motion back.
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After I had the first of five
treatments, I moved my.
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Big toe.
So that seemed to be helping.
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And once I moved to the
inpatient rehab floor, I started
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using a manual wheelchair that I
pushed with my legs because I
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couldn't move the wheels with my
arms.
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So they kind of got me up and
going in that respect.
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And I then started to walk with
assistance.
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I would wear a gait belt and my
physical therapist would hold on
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to me and we would practice
walking.
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And I of course got tired very
quickly and needed a lot of
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help, but they kind of got me up
and going.
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And so just doing a lot of
physical and occupational
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therapy helped with that.
And at the end of my two-month
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stay in the hospital, I was able
to walk out of the hospital with
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some assistance and I had
regained a little bit of arm and
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hand motion during my rehab
stay.
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So I left the hospital with
being able to move my right hand
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a little bit and having a tiny
bit of motion in certain areas
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of my arms.
Essentially I probably regained
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some strength for about.
Two years after I left the
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hospital, but basically for
about the last 10 years.
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I've kind of been on the same
level of strength since then, So
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I have very, like, spotty
paralysis in my arms and hands.
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I can't move my left hand at
all.
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My right hand is very weak, but
I can move it and I can't lift
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my shoulders up.
Really.
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It's hard to explain unless you
kind of interact with me or
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watch me move, but I have spotty
paralysis in my arms and hands
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today.
So do you still continue on with
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physical and occupational
therapies even to today or is
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that something that you kind of
halted because you're pretty
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much OK with the way that the
motions are and it's pretty much
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stabilized?
Back when everything first
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happened, I of course did a lot
of therapy.
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And I did a lot of therapy for a
few years after getting
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diagnosed.
But even back then, within the
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first few months, I was kind of
like, OK, like, I don't really
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care about doing therapy.
I just kind of want to go back
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to my life and do what you
wanted to do.
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Yeah, So that was.
Really my top priority.
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I also understood that I needed
to do it on some level if I
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wanted to get back to dancing.
And there was a moment in
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physical therapy a few months
after everything happened where
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I was able to stand on my tip
toes and that kind of made me
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think that I could start dancing
again.
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But at the same time, I was not
into doing therapy.
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I just kind of wanted to accept
things and move on with my 8
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year old life.
And that's how I am today.
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Like, I'm not really interested
in therapy.
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Mostly what therapy is helpful
with now is.
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Finding ways for me to do
things.
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So I really like asking, like my
occupational therapist for
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advice on how I could maybe
improve, like brushing my hair,
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or like improve my workspace for
when I'm doing homework.
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But I'm not interested in really
recovery based therapy because
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also at this point in my
diagnosis that's not even
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realistic.
So I moved on from that pretty
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quickly in my head, even though
I still did it for a few years
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after everything happened.
Yeah, I know From having a
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disabled son myself, you become
a master at just life hacking.
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You just yes, You know, we call
it Macgyvering.
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It's like we'll just figure
things out.
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We'll like tie things together.
We'll make things easier than
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you know.
But.
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But we have to do it very
customized because he's an N of
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1.
You're an N of 1, and nobody's
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like you.
And so you kind of make up your
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own ways of doing things to the
best of your ability.
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And sometimes you get those
little, oh, that's kind of cool.
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Maybe I'll try that.
Yeah.
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You kind of figure out you know
and invent things on your own,
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don't you?
Yes.
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I mean, humans are amazing and
adapting, and I think a lot of
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people think if they ever became
disabled, they wouldn't be able
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to figure out how to do things.
But it's really like the case
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that if you become disabled, you
kind of just work with it and
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figure out ways to do certain
things.
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And if you need help with
certain things, that's OK too.
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You just kind of learn kind of
what you can and can't do and go
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with it.
Yeah, absolutely.
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That's amazing.
So you have to tell me about
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getting back to dancing.
I love that you were so
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tenacious.
And you're like, this is what I
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want to do.
I'm going to figure out how to
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do it.
You know, What point did you go
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back to?
Ballet.
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So while I was in the ICU, I had
my dance companies DVD's like
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playing on the TV in there, like
I was watching them and it was
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of course really heavily on my
mind and I had had plans to
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audition for my dance companies.
Like real, like company.
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Like being a member of the
company.
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00:11:20,280 --> 00:11:23,280
Because you could do that once
you were nine years old and they
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were actually letting me.
Audition early at 8 years old,
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and I really wanted to be able
to make those auditions.
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And then when that deadline
passed, because I was in the
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hospital, my goal was to be able
to go to my dance recital.
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That was in June and everything
happened to me in April, but
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that deadline passed and so then
I was like, OK, I didn't achieve
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those things, but I really
wanted to just get back to
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dancing just because it was
something I loved and I wanted
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to just be able to do it as a
hobby at the very least.
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So my therapist knew that that
was a goal of mine.
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So when I stood on my tiptoe.
Goes in therapy.
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Once I got out of the hospital,
they were of course really
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excited for me and they tried to
like incorporate doing like Just
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Dance on the Wii and stuff to
make therapy fun because they
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knew I loved dancing.
So they were supportive of that.
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But the day after I stood on my
tip toes in therapy, I went home
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from therapy and then I had my
dad like helped me set up my
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dance DVD's I would always dance
to in our family room.
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And I remember he wanted to stay
in the room and watch me and
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make sure I was OK And I was
like, no.
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00:12:24,280 --> 00:12:27,000
Fine, because I never liked when
my family watched unless I
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wanted them to.
Yeah.
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And he went and sat in the next
room over and I'm sure he was
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scared of me falling or
something.
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00:12:33,120 --> 00:12:35,480
But I just did like one quick
little dance.
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00:12:35,520 --> 00:12:38,760
And I remember being a little
bit unhappy with how I did
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00:12:38,760 --> 00:12:42,080
things because of course it
wasn't like normal, but I was
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super proud that I was able to
do it.
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00:12:44,320 --> 00:12:47,520
And then as I kept dancing more
and more, I think it helped me
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get stronger for one thing,
physically and then also
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mentally.
But I started to realize that I
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00:12:52,720 --> 00:12:55,800
could just change the.
Moves of the dances I already
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knew to make them fit my body's
abilities.
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00:12:59,240 --> 00:13:01,760
So I guess I just kind of
realized I was already
256
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subconsciously doing that on
some level.
257
00:13:04,240 --> 00:13:07,280
And I was like, I could actually
make this into my own hobby of
258
00:13:07,280 --> 00:13:10,160
choreography.
And that's how I just decided to
259
00:13:10,160 --> 00:13:13,040
start choreographing dances,
because they then became
260
00:13:13,040 --> 00:13:16,480
something that was really unique
to me and something I could do
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on my own.
And I realized that my
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00:13:18,360 --> 00:13:21,680
disability was kind of serving
as like the driving creative
263
00:13:21,680 --> 00:13:24,120
force for my dancing.
And that was really.
264
00:13:24,200 --> 00:13:26,360
Really cool.
And that made me discover a
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00:13:26,360 --> 00:13:28,720
whole new hobby I probably
wouldn't have discovered if I
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hadn't become disabled.
Wow.
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00:13:30,400 --> 00:13:32,880
That is so great.
And I think that it's a great
268
00:13:32,880 --> 00:13:36,680
lesson in the fact that, you
know, dancing is something that
269
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is there to bring you joy.
It's a release.
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00:13:39,640 --> 00:13:42,120
It's very cathartic.
And so whether or not you feel
271
00:13:42,120 --> 00:13:44,880
like somebody else is watching
and you're doing a performance,
272
00:13:44,880 --> 00:13:47,240
you know, there's certainly that
side where you're doing it to
273
00:13:47,320 --> 00:13:49,360
entertain.
But then on the flip side,
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00:13:49,360 --> 00:13:51,640
there's just something about
moving the body.
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00:13:51,640 --> 00:13:56,520
And yeah, it might not look the
same same way, but adapting is
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00:13:56,520 --> 00:13:57,880
is wonderful.
And.
277
00:13:57,960 --> 00:14:02,040
And not judging yourself for not
necessarily doing it right,
278
00:14:02,040 --> 00:14:04,880
always wanting to be better.
But yeah, there's that fine line
279
00:14:04,880 --> 00:14:07,400
between, you know, criticizing
yourself and saying, oh, I
280
00:14:07,400 --> 00:14:08,760
didn't do that the way that I
wanted to.
281
00:14:08,760 --> 00:14:12,640
But yeah, yeah, getting a little
bit, you know, better and just
282
00:14:12,640 --> 00:14:15,960
feeling that you're always
getting joy out of it is, you
283
00:14:15,960 --> 00:14:19,280
know, the best thing ever.
Oh, that's wonderful.
284
00:14:19,280 --> 00:14:22,600
I love that.
And so, gosh, now you are an
285
00:14:22,600 --> 00:14:25,160
advocate for people who are
living with disabilities.
286
00:14:25,160 --> 00:14:28,040
And, you know, it's empowering
you to be your own advocate
287
00:14:28,040 --> 00:14:30,960
because I think that in a lot of
your videos you're showing the
288
00:14:30,960 --> 00:14:34,120
world what it's like to be you.
You're pretty much helping to
289
00:14:34,160 --> 00:14:37,520
educate on what life is like in
in the world of Sarah Todd.
290
00:14:37,520 --> 00:14:40,960
Not necessarily asking for help,
not necessarily, you know,
291
00:14:40,960 --> 00:14:43,920
asking for advice, which I know
you probably get plenty of.
292
00:14:43,920 --> 00:14:47,080
And not necessarily doing it to
be an inspiration, but really
293
00:14:47,080 --> 00:14:49,360
just being an advocate and
saying this is what life is
294
00:14:49,360 --> 00:14:50,880
like.
And hey, there are certain
295
00:14:50,880 --> 00:14:54,120
things that could be made easier
and more accessible for people
296
00:14:54,240 --> 00:14:56,920
who have conditions such as mine
or others.
297
00:14:56,960 --> 00:15:00,720
But yeah, And a lot of people
aren't really necessarily aware
298
00:15:00,720 --> 00:15:02,480
of it.
And so they appreciate having a
299
00:15:02,480 --> 00:15:05,240
glimpse into what it's like and
saying, oh gosh, you know, if I
300
00:15:05,240 --> 00:15:08,240
could be more mindful and if I
come across somebody like Sarah
301
00:15:08,240 --> 00:15:11,160
Todd or anybody else, then I'll
kind of know what to do or not
302
00:15:11,160 --> 00:15:13,040
know what to say.
It may not be perfect because
303
00:15:13,040 --> 00:15:16,240
that person might not be exactly
the same mindset that Sarah is,
304
00:15:16,240 --> 00:15:18,760
which and you're extremely
positive, which is wonderful.
305
00:15:18,760 --> 00:15:21,640
But I think that people are
really, you know, gravitating to
306
00:15:21,640 --> 00:15:24,720
your voice and your expression.
Did you always know that you
307
00:15:24,720 --> 00:15:27,760
wanted to use your voice to help
others to create positive
308
00:15:27,760 --> 00:15:31,120
change?
So pretty shortly after I became
309
00:15:31,120 --> 00:15:35,080
disabled, I got into disability
advocacy and that all kind of
310
00:15:35,080 --> 00:15:38,240
started in 2012.
So just two years after,
311
00:15:38,240 --> 00:15:42,760
everything happened when I met
one of my now best friends who
312
00:15:42,760 --> 00:15:46,080
was also diagnosed with
transverse myelitis, which we
313
00:15:46,080 --> 00:15:47,400
thought I had at the time,
right?
314
00:15:47,560 --> 00:15:50,480
And we met in person.
Our moms had been talking on
315
00:15:50,480 --> 00:15:53,840
like a Facebook support group,
and then we were both at Johns
316
00:15:53,840 --> 00:15:55,640
Hopkins.
For medical treatments around
317
00:15:55,640 --> 00:15:58,240
the same time.
And we met in person and she was
318
00:15:58,240 --> 00:16:01,560
14 and I was 10.
But we got along really well and
319
00:16:01,560 --> 00:16:03,880
related to each other on so many
levels.
320
00:16:03,880 --> 00:16:09,000
And shortly after that we just
decided to write up our stories
321
00:16:09,000 --> 00:16:12,040
with our disability journeys and
put them in a book together.
322
00:16:12,040 --> 00:16:15,560
So we did that and then
published it when I was 11 years
323
00:16:15,560 --> 00:16:17,720
old.
And then we wrote two more books
324
00:16:17,720 --> 00:16:20,040
and made a trilogy out of our
lives.
325
00:16:20,200 --> 00:16:24,120
And those were published when I
was 14 and 17 and so writing.
326
00:16:24,200 --> 00:16:27,360
The books is kind of what made
me realize that I could do a lot
327
00:16:27,360 --> 00:16:30,080
with disability advocacy.
And it also helped me realize
328
00:16:30,080 --> 00:16:32,560
that I love to write, which I
didn't know before.
329
00:16:32,560 --> 00:16:35,280
I did that.
And that's how I got started
330
00:16:35,440 --> 00:16:39,440
writing articles for news
publications and then speaking.
331
00:16:39,440 --> 00:16:42,920
And I did book signings and I
spoke on podcasts, I spoke at
332
00:16:42,920 --> 00:16:45,440
schools.
I did little like mini
333
00:16:45,440 --> 00:16:48,080
documentaries.
And so that's kind of how all of
334
00:16:48,080 --> 00:16:51,360
that advocacy started.
And I always was open about my
335
00:16:51,360 --> 00:16:54,000
disability on my social media.
I made my.
336
00:16:54,200 --> 00:16:57,960
Social media public When I was
in high school, probably like
337
00:16:58,080 --> 00:17:01,480
9th or 10th grade, and I
realized people were interested
338
00:17:01,480 --> 00:17:04,240
in certain things about my life.
So I always talked about it on
339
00:17:04,240 --> 00:17:08,119
some level on my social media.
But then in March 2020 when
340
00:17:08,119 --> 00:17:11,040
COVID hit and I didn't have
anything else to do, I had
341
00:17:11,040 --> 00:17:14,040
downloaded TikTok and TikTok was
really taking off around that
342
00:17:14,040 --> 00:17:16,440
time.
And there was a trend on there
343
00:17:16,440 --> 00:17:19,920
where you would put up both your
hands and say put a finger down
344
00:17:19,920 --> 00:17:23,000
if and then tell a story that
was super specific to you and
345
00:17:23,000 --> 00:17:24,440
then at the end put a finger.
Down.
346
00:17:24,520 --> 00:17:27,880
And I was like, Oh my gosh, I
could do this with my AFM story.
347
00:17:27,880 --> 00:17:30,720
So I just randomly did that one
day and everyone loved it.
348
00:17:30,720 --> 00:17:33,360
It got over 1,000,000 views and
I was like, wow, so people are
349
00:17:33,360 --> 00:17:35,760
interested in this.
And that's when I started
350
00:17:35,760 --> 00:17:38,160
posting a lot.
And that's how my presence grew
351
00:17:38,160 --> 00:17:40,400
on TikTok, YouTube and
Instagram.
352
00:17:40,400 --> 00:17:42,440
And it's kind of just taken off
from there.
353
00:17:42,440 --> 00:17:45,400
I feel like I've gotten more
creative with the ideas that
354
00:17:45,400 --> 00:17:48,600
I've thought of things to post.
I realized that there are things
355
00:17:48,600 --> 00:17:51,040
that might not seem super
interesting to me, but that
356
00:17:51,120 --> 00:17:52,880
other people love to learn
about.
357
00:17:52,920 --> 00:17:55,640
And so as I'm going through my.
Day sometimes I'm like, oh, I'll
358
00:17:55,640 --> 00:17:57,320
just film this.
I think someone would find it
359
00:17:57,320 --> 00:18:00,680
interesting and people do.
So that's kind of how that
360
00:18:00,800 --> 00:18:03,080
evolved, I guess that's
incredible.
361
00:18:03,120 --> 00:18:07,000
And so, yeah, it seems like what
you're sharing is so relatable
362
00:18:07,000 --> 00:18:10,360
as life of a college student,
things that, you know, like
363
00:18:10,360 --> 00:18:13,800
topics like ableism,
discrimination, the importance
364
00:18:13,800 --> 00:18:17,120
of accessibility.
And so do you feel that like the
365
00:18:17,200 --> 00:18:20,560
act of doing your social media
has also just helped you in
366
00:18:20,560 --> 00:18:24,880
terms of like your catharsis or
feeling confident and feeling
367
00:18:24,880 --> 00:18:29,120
like, yeah, I can actually be a
voice for people who are
368
00:18:29,120 --> 00:18:32,320
disabled and maybe make some
real change in the future?
369
00:18:32,560 --> 00:18:35,400
Yeah, I mean, I definitely get
great feedback from a lot of
370
00:18:35,400 --> 00:18:37,720
people, even like with my books
as well.
371
00:18:37,720 --> 00:18:40,200
People saying that my books have
made a difference for them,
372
00:18:40,280 --> 00:18:44,720
which is always nice to hear.
And it's cool just learning what
373
00:18:44,720 --> 00:18:47,360
people are interested in.
Because like I said, there are
374
00:18:47,360 --> 00:18:49,320
things that I think might not be
that interesting.
375
00:18:49,320 --> 00:18:51,600
And then I post them and people
are like, Oh my gosh, I loved
376
00:18:51,600 --> 00:18:54,120
learning this or I love seeing
into your life.
377
00:18:54,280 --> 00:18:57,560
And a good example of something
of that nature is the other day
378
00:18:57,560 --> 00:19:00,600
I just posted a video talking
about how one of the employees
379
00:19:00,600 --> 00:19:03,600
at my college cafe helped me
open my water bottle and my
380
00:19:03,600 --> 00:19:06,960
ketchup and everyone loved that.
I got like 400,000 views.
381
00:19:06,960 --> 00:19:09,920
People like, oh, that's so nice.
Like I love that you are able to
382
00:19:09,920 --> 00:19:11,840
ask for help.
So just things like that are
383
00:19:11,840 --> 00:19:15,520
nice to see the feedback on.
And yeah, it's nice knowing and
384
00:19:15,680 --> 00:19:18,600
making a difference.
And I also learn as I'm doing it
385
00:19:18,600 --> 00:19:21,960
too, because sometimes I'll post
something and then some people
386
00:19:21,960 --> 00:19:24,120
leave really thoughtful comments
and then.
387
00:19:24,200 --> 00:19:26,800
And we have like a dialogue
about the whole topic.
388
00:19:26,800 --> 00:19:29,880
And so I'm learning as I'm doing
it too, which I really like.
389
00:19:29,920 --> 00:19:32,680
Yeah, sometimes in TikTok it's
like I'm here for the comments
390
00:19:32,720 --> 00:19:36,040
and I'm just go through and I I
love the humor.
391
00:19:36,040 --> 00:19:38,360
I love some of the things that
people say the way that they
392
00:19:38,360 --> 00:19:41,680
support with such humor.
It's actually really, really
393
00:19:41,680 --> 00:19:43,400
great.
And the interesting thing that
394
00:19:43,400 --> 00:19:46,200
I've noticed as I was watching
some of your videos is that you
395
00:19:46,200 --> 00:19:49,400
are learning more about yourself
and you are evolving to where
396
00:19:49,400 --> 00:19:52,360
before you might have been a
little bit shy to ask for help,
397
00:19:52,360 --> 00:19:55,160
but now you feel more confident
about asking for help.
398
00:19:55,160 --> 00:19:58,360
And so it's really nice for
people to know that, you know,
399
00:19:58,360 --> 00:20:00,320
you're on your own journey as
well.
400
00:20:00,320 --> 00:20:03,320
And the thing that I have
noticed of having a disabled son
401
00:20:03,320 --> 00:20:05,360
is that a lot of people were
just scared.
402
00:20:05,360 --> 00:20:08,880
They were intimidated and shy to
even approach somebody for fear
403
00:20:08,880 --> 00:20:11,320
that they might say the wrong
thing, that they might do the
404
00:20:11,320 --> 00:20:13,920
wrong thing, they might just
mess up and it would be just
405
00:20:13,920 --> 00:20:16,120
embarrassing and shameful for
everybody involved.
406
00:20:16,120 --> 00:20:17,960
But that's not necessarily the
case.
407
00:20:17,960 --> 00:20:20,560
I always say like air on the
side of asking.
408
00:20:20,640 --> 00:20:22,600
It's like, hey, oh, what's going
on?
409
00:20:22,600 --> 00:20:24,040
But not doing it in a way like
oh.
410
00:20:24,200 --> 00:20:27,640
What's wrong with you?
Like, oh, I'm gonna pray for
411
00:20:27,640 --> 00:20:28,920
you.
It's not that near like know
412
00:20:28,920 --> 00:20:32,240
that this is a human being and
there is a sense of dignity and
413
00:20:32,240 --> 00:20:35,160
empowerment that, you know,
everybody wants to feel.
414
00:20:35,200 --> 00:20:37,640
And so just having that
conversation and saying, hey,
415
00:20:37,640 --> 00:20:41,200
need a hand or hey, you know,
can I help with that is that you
416
00:20:41,200 --> 00:20:42,520
know something completely.
OK.
417
00:20:42,560 --> 00:20:44,880
The word disabled.
A lot of people are like, oh, I
418
00:20:44,880 --> 00:20:47,240
don't want to say the word
disabled differently.
419
00:20:47,240 --> 00:20:48,720
Able to something.
I hate that.
420
00:20:49,040 --> 00:20:50,760
Yeah, it's like, don't pussyfoot
around it.
421
00:20:50,760 --> 00:20:54,320
Come on.
Just like, exactly OK to say
422
00:20:54,320 --> 00:20:57,520
disabled and to say disability.
I think that most people feel
423
00:20:57,520 --> 00:20:59,160
that way.
Some people, again, I don't want
424
00:20:59,160 --> 00:21:01,600
to make a blank statement, but
you know, some people may get
425
00:21:01,600 --> 00:21:03,960
offended by it.
But for the most part, it's just
426
00:21:03,960 --> 00:21:07,520
an easier way to say this is how
I am, this is how I know that
427
00:21:07,520 --> 00:21:09,560
I'm allowed to park in this spot
and.
428
00:21:10,680 --> 00:21:13,720
Exactly.
All of those things.
429
00:21:14,000 --> 00:21:17,040
So you're also the president of
the Disability Alliance at your
430
00:21:17,040 --> 00:21:22,280
college.
So I'm a junior at college now
431
00:21:22,320 --> 00:21:19,160
and when I was applying to.
Can you tell us more about that?
432
00:21:24,200 --> 00:21:29,120
My school, I knew that they had
a disability club because I was
433
00:21:29,120 --> 00:21:32,720
talking to a current student and
she was a part of it and it had
434
00:21:32,720 --> 00:21:36,880
a different name at the time.
But when I got to college, I got
435
00:21:36,880 --> 00:21:40,880
in contact with the president of
the current club and shared some
436
00:21:40,880 --> 00:21:44,080
of my ideas with her and told
her that I wasn't fond of the
437
00:21:44,080 --> 00:21:46,400
name of the club.
It just kind of sounded a little
438
00:21:46,400 --> 00:21:48,800
condescending.
It had the words diverse
439
00:21:48,800 --> 00:21:52,080
abilities in there, so we were
not a fan of the name of the
440
00:21:52,080 --> 00:21:54,120
club.
So we had some conversations.
441
00:21:54,200 --> 00:21:57,200
About changing the name and
revamping the club a little bit.
442
00:21:57,280 --> 00:22:01,480
And so last year, my sophomore
year, we did that and changed
443
00:22:01,480 --> 00:22:04,200
the name and kind of came up
with some new goals for the
444
00:22:04,200 --> 00:22:06,800
club.
And the president of the club
445
00:22:06,800 --> 00:22:10,960
was a senior last year and I was
a sophomore, so she made me Co
446
00:22:10,960 --> 00:22:13,680
president with her.
And then when she graduated last
447
00:22:13,680 --> 00:22:15,800
year, I became president this
year.
448
00:22:15,840 --> 00:22:19,400
And we've done some cool things.
We're trying to focus on
449
00:22:19,400 --> 00:22:23,880
disability culture and identity.
So we felt that that was a big.
450
00:22:24,200 --> 00:22:27,440
Need at my school because we're
trying to get people to realize
451
00:22:27,440 --> 00:22:31,320
that disability is diversity and
we're seeing that disabled
452
00:22:31,320 --> 00:22:34,080
students want that as well.
So that's a big focus of our
453
00:22:34,080 --> 00:22:36,160
club.
But we also have the focus on
454
00:22:36,200 --> 00:22:39,960
educating the campus community.
So we've done an event that was
455
00:22:39,960 --> 00:22:43,000
a service dog etiquette
education event where two
456
00:22:43,000 --> 00:22:45,760
students with service dogs
talked about their experience
457
00:22:45,760 --> 00:22:48,400
and like what to do and not to
do around service dogs.
458
00:22:48,440 --> 00:22:51,560
And every year we do an
accessibility scavenger hunt
459
00:22:51,600 --> 00:22:54,120
where we go to a building on
campus and find.
460
00:22:54,200 --> 00:22:56,480
Things about it that are
accessible and then things that
461
00:22:56,480 --> 00:22:59,560
are inaccessible and then
whoever finds like the most
462
00:22:59,560 --> 00:23:03,120
creative things when surprised.
We on Friday are doing
463
00:23:03,120 --> 00:23:07,480
disability trivia, so we'll have
some trivia questions written
464
00:23:07,560 --> 00:23:11,440
and people can come and get some
free food and play trivia to
465
00:23:11,440 --> 00:23:14,560
test their disability knowledge.
So just do like fun events like
466
00:23:14,560 --> 00:23:17,920
that and a variety of different
things and we have a good amount
467
00:23:17,920 --> 00:23:20,000
of people who come to the
events.
468
00:23:20,000 --> 00:23:24,000
Our education event had about 40
attendees and it was open to
469
00:23:24,000 --> 00:23:25,480
the.
Whole campus, so anyone could
470
00:23:25,480 --> 00:23:28,520
come, and it's nice seeing that
people are interested in
471
00:23:28,520 --> 00:23:30,800
learning about disability.
I feel like there's a good
472
00:23:30,800 --> 00:23:34,120
amount of people here who are
showing an interest, which gives
473
00:23:34,120 --> 00:23:36,200
me hope.
That's amazing.
474
00:23:36,200 --> 00:23:39,200
Well, congratulations on all
those fun activities and for
475
00:23:39,200 --> 00:23:40,800
such a great turn out.
Thank you.
476
00:23:41,520 --> 00:23:44,960
So now I also noticed on your
TikTok videos that you are
477
00:23:44,960 --> 00:23:48,520
showing the accessible and
inaccessible items around your
478
00:23:48,520 --> 00:23:51,400
college campus, probably very
similar to your scavenger hunt
479
00:23:51,400 --> 00:23:54,000
that you had done.
I'm just curious because I know
480
00:23:54,000 --> 00:23:57,120
that you also did a video on a
hotel where the lift was
481
00:23:57,200 --> 00:24:00,480
inoperable and then, you know,
after several months, they gave
482
00:24:00,480 --> 00:24:04,040
you kind of a lame letter back
about like, oh, we're so sorry,
483
00:24:04,040 --> 00:24:04,960
kind of thing.
And.
484
00:24:04,960 --> 00:24:06,680
And that was pretty much it.
Wah wah.
485
00:24:07,520 --> 00:24:12,440
But but yeah, I'm curious, like,
have you gotten any surprising
486
00:24:12,440 --> 00:24:15,360
responses in terms of being able
to call out certain
487
00:24:15,360 --> 00:24:18,560
inaccessibilities?
Have there been some changes
488
00:24:18,560 --> 00:24:21,680
based upon, you know, you're
vocalizing that you've noticed
489
00:24:21,680 --> 00:24:23,960
something?
So usually when I know.
490
00:24:24,200 --> 00:24:26,000
Something's inaccessible at my
college.
491
00:24:26,000 --> 00:24:28,560
It's oftentimes a door.
Like that's almost always the
492
00:24:28,560 --> 00:24:30,800
thing.
And I'll have someone help me
493
00:24:30,800 --> 00:24:34,800
film a video of it to educate
just the broader world on
494
00:24:34,920 --> 00:24:36,760
accessibility.
And then I'll share that on my
495
00:24:36,760 --> 00:24:40,520
TikTok and my Instagram.
And then I go to the disability
496
00:24:40,520 --> 00:24:42,800
office and let them know that
it's broken.
497
00:24:42,880 --> 00:24:45,880
And then they submit a work
order and physical plan fixes
498
00:24:45,880 --> 00:24:48,040
it.
And that usually is very quick.
499
00:24:48,040 --> 00:24:49,440
It usually just takes a few
days.
500
00:24:49,480 --> 00:24:52,880
But most of the change at my
school hasn't come really from
501
00:24:52,880 --> 00:24:54,520
like me posting on.
Talk.
502
00:24:54,600 --> 00:24:57,640
It's more like I notice things.
I'll post them and then I also
503
00:24:57,640 --> 00:25:00,560
have to take the extra step to
e-mail them and let them know.
504
00:25:00,920 --> 00:25:03,360
Yeah, but they are really
responsive, which is great.
505
00:25:03,360 --> 00:25:06,400
I do just wish that that
responsibility didn't fall on
506
00:25:06,400 --> 00:25:09,960
students to report things.
I suggested to them that it
507
00:25:09,960 --> 00:25:13,480
would be nice if fiscal plant go
around like once a month and
508
00:25:13,480 --> 00:25:15,200
check the elevators and the
doors.
509
00:25:15,280 --> 00:25:18,200
And they said that they didn't
have the capacity to do that.
510
00:25:18,240 --> 00:25:20,640
But I wish that there was just
something where it wasn't.
511
00:25:20,680 --> 00:25:24,080
Always students having to report
things is broken because it.
512
00:25:24,200 --> 00:25:26,640
It's exhausting.
Like, I don't feel like doing it
513
00:25:26,640 --> 00:25:29,760
all the time, but once it's
reported, they do fix it, which
514
00:25:29,760 --> 00:25:31,800
is good.
HM yeah, I know.
515
00:25:31,800 --> 00:25:35,000
That's unfortunately the the
realities of life sometimes.
516
00:25:35,040 --> 00:25:36,080
That's sad.
Yeah.
517
00:25:36,080 --> 00:25:38,880
Hopefully with additional
attention maybe maybe there will
518
00:25:38,880 --> 00:25:42,000
be some other measures that can
be taken that are more proactive
519
00:25:42,240 --> 00:25:43,920
than.
Yeah, I would hope so.
520
00:25:43,920 --> 00:25:47,520
I mean, my disability club has
talked about maybe making like
521
00:25:47,760 --> 00:25:51,880
little signs for the accessible
door buttons that say to please
522
00:25:51,880 --> 00:25:54,040
press them gently because I feel
like they break.
523
00:25:54,200 --> 00:25:57,040
A lot when people smack them or
hit them with their feet and
524
00:25:57,040 --> 00:26:00,640
then we're going to put a QR
code that people could scan that
525
00:26:00,640 --> 00:26:04,040
will send them resources on how
they can report the button is
526
00:26:04,040 --> 00:26:06,440
broken.
So that's an idea that we had
527
00:26:06,440 --> 00:26:08,680
that we're going to see if we
can implement on campus.
528
00:26:08,680 --> 00:26:11,320
I haven't asked the disability
office about it yet, but I kind
529
00:26:11,320 --> 00:26:14,520
of want to get their input on if
that could be done, If we could
530
00:26:14,520 --> 00:26:16,880
go around and do that.
And if they say yes, then I
531
00:26:16,880 --> 00:26:19,400
think we'll go around and put up
those signs and that might make
532
00:26:19,400 --> 00:26:21,880
a difference, Yeah.
And it seems like the newer
533
00:26:21,880 --> 00:26:24,440
buildings are a little bit
better, you know, they the
534
00:26:24,440 --> 00:26:28,200
better quality equipment.
And they seem to have the ADA
535
00:26:28,200 --> 00:26:30,480
much more in mind.
Some of these universities with
536
00:26:30,560 --> 00:26:33,920
much older buildings, Oh boy,
it's treacherous going up some
537
00:26:34,080 --> 00:26:35,440
of this.
Hard.
538
00:26:35,520 --> 00:26:37,520
Yeah.
And some of the elevators are
539
00:26:37,520 --> 00:26:40,880
just really old and creaky.
And yeah, it's hard.
540
00:26:43,720 --> 00:26:46,520
All right, let's shift gears and
talk about something fun.
541
00:26:46,520 --> 00:26:48,640
Let's talk about clothes.
Gosh darn it.
542
00:26:48,680 --> 00:26:50,480
Let's talk about accessible
clothes.
543
00:26:50,480 --> 00:26:53,440
Now, I saw some videos where I
always give love to Zappos
544
00:26:53,440 --> 00:26:55,840
because they are one of my
favorite accessible places, as
545
00:26:55,840 --> 00:26:58,320
well as Hilfiger.
I always give love to Tommy
546
00:26:58,320 --> 00:27:00,960
Hilfiger for all the incredible
outfits.
547
00:27:00,960 --> 00:27:03,640
But do you have some favorites
or there's some favorite pieces
548
00:27:03,640 --> 00:27:05,960
that you have, some other
favorite brands that you have?
549
00:27:06,000 --> 00:27:07,560
I agree.
I love Zappos.
550
00:27:07,720 --> 00:27:09,920
They're my favorite.
Tommy Hilfiger is one of my
551
00:27:09,960 --> 00:27:12,120
favorites.
I've been posting some social
552
00:27:12,120 --> 00:27:14,400
media.
Zappos talking about their
553
00:27:14,400 --> 00:27:16,040
clothing.
The dress I'm wearing right now
554
00:27:16,040 --> 00:27:18,360
is from Zappos.
They just have like really good
555
00:27:18,360 --> 00:27:20,760
variety.
They have great kids clothes,
556
00:27:20,760 --> 00:27:23,840
which is awesome for me because
I tend to wear kids clothes
557
00:27:23,840 --> 00:27:27,600
because they fit me the best.
So I love Zappos and it's nice
558
00:27:27,600 --> 00:27:30,800
to see companies thinking about
disabled people and being
559
00:27:30,800 --> 00:27:33,680
innovative in design.
And what really helps me is
560
00:27:33,680 --> 00:27:36,720
finding clothing that doesn't
have buttons and zippers because
561
00:27:36,760 --> 00:27:41,120
I can't do those independently.
So finding clothing that maybe
562
00:27:41,120 --> 00:27:44,720
just has like a stretchier.
Neck so I can like easily put it
563
00:27:44,720 --> 00:27:48,760
on and take it off on finding
things like elastic waistbands
564
00:27:48,760 --> 00:27:51,760
that's easy to pull up and down.
I found some great shoes from
565
00:27:51,760 --> 00:27:55,200
Zappos that look like they have
laces but they're slip on shoes.
566
00:27:55,200 --> 00:27:58,640
So I get like the style like and
the look that I want but the
567
00:27:58,640 --> 00:28:00,640
function is there which is
amazing.
568
00:28:00,640 --> 00:28:03,440
So those are like some of my
favorite things to look or and
569
00:28:03,440 --> 00:28:06,440
especially to dresses and tank
tops that have like adjustable
570
00:28:06,440 --> 00:28:12,480
straps is so nice because I'm so
small and it's just so hard so.
571
00:28:12,680 --> 00:28:15,280
Yeah, I love Zappos.
I love Tommy Hilfiger.
572
00:28:15,280 --> 00:28:19,000
JC Penney has some stuff too.
I just posted some social media
573
00:28:19,000 --> 00:28:21,360
ads for them as well.
And so, yeah, it's really nice
574
00:28:21,360 --> 00:28:24,400
seeing these companies caring
about disability and making
575
00:28:24,400 --> 00:28:26,920
their items inclusive.
Yeah, awesome.
576
00:28:26,920 --> 00:28:30,400
Yeah, we've been pretty loyal to
this brand called Billy that
577
00:28:30,400 --> 00:28:34,120
makes these great shoes that you
can like, zip around.
578
00:28:34,120 --> 00:28:37,720
And I think that my son has them
in like 5 or 6 different colors.
579
00:28:38,560 --> 00:28:40,240
I've heard of those.
I've heard they're great.
580
00:28:40,240 --> 00:28:42,560
They're really great for kids
that are wearing AFO.
581
00:28:42,680 --> 00:28:46,320
Those or those that don't have
the ability, to your point, LASA
582
00:28:46,320 --> 00:28:49,680
or even, you know, do Velcro.
These are just so easy to just
583
00:28:49,680 --> 00:28:53,680
zip around the tongue and get on
and off with with no trouble at
584
00:28:53,680 --> 00:28:55,040
all.
Those are fabulous.
585
00:28:55,440 --> 00:28:58,160
Yes, I love shoes.
Like, shoes are so hard.
586
00:28:58,200 --> 00:29:00,520
So finding shoes they're easy to
do is amazing.
587
00:29:00,600 --> 00:29:03,280
Yeah, for sure.
And walking around campus too,
588
00:29:03,280 --> 00:29:05,320
you want to make sure that
they're comfortable as well.
589
00:29:05,360 --> 00:29:07,560
Yes, yes.
And my favorite shoes right now
590
00:29:07,560 --> 00:29:10,760
are my ones from Zappos that are
just like slip ONS, but they
591
00:29:10,760 --> 00:29:13,440
look like shoes with laces.
Love that.
592
00:29:14,080 --> 00:29:15,760
So ingenious.
Yeah.
593
00:29:15,880 --> 00:29:19,360
So tell me, like, if there is a
day that is particularly tough
594
00:29:19,360 --> 00:29:21,920
and you're feeling like, who?
I'm just curious, Like, I mean,
595
00:29:21,920 --> 00:29:24,040
we went through COVID.
There must have been some pretty
596
00:29:24,040 --> 00:29:25,800
tough days.
But you know, is there anything
597
00:29:25,800 --> 00:29:28,680
that you do or that you've got a
routine that helps to kind of
598
00:29:28,680 --> 00:29:31,440
lift you out of that?
I mean, it sounds unrealistic,
599
00:29:31,440 --> 00:29:34,160
but I'm honestly like hardly
ever in a bad mood.
600
00:29:34,160 --> 00:29:37,960
Like it happens so infrequently.
I mean there are sometimes where
601
00:29:37,960 --> 00:29:40,520
like it typically happens if I'm
like walking to class and I'm
602
00:29:40,520 --> 00:29:42,240
just like thinking while I'm
walking.
603
00:29:42,680 --> 00:29:45,400
Or maybe sometimes where I'm
like wishing that whatever I'm
604
00:29:45,400 --> 00:29:48,240
wearing, like, fit me better.
And because a lot of the time my
605
00:29:48,240 --> 00:29:51,480
clothes don't fit me well
because my arms have a lot of
606
00:29:51,480 --> 00:29:54,480
muscle atrophy.
And so I know that if I didn't
607
00:29:54,480 --> 00:29:57,000
have a disability, stuff would
fit me better and I would look
608
00:29:57,000 --> 00:29:59,720
better in certain things.
So sometimes I get down about
609
00:29:59,720 --> 00:30:02,200
that, but not really in an
insecure way, more so just in an
610
00:30:02,200 --> 00:30:04,080
annoyed way.
So that's something I might get
611
00:30:04,080 --> 00:30:06,040
frustrated with.
Or if I need help with
612
00:30:06,040 --> 00:30:08,040
something.
And on the odd chance that
613
00:30:08,040 --> 00:30:11,120
someone's not around, that can
be annoying, but I usually just
614
00:30:11,120 --> 00:30:12,600
have to wait a bit and then
someone can.
615
00:30:12,680 --> 00:30:13,680
Income help.
I don't know.
616
00:30:13,680 --> 00:30:16,160
I mean, sometimes I just like,
have the thought and I let
617
00:30:16,160 --> 00:30:19,000
myself have the thought and then
just in kind of like, you know,
618
00:30:19,000 --> 00:30:22,000
it's OK Like I'm hardly ever
upset about anything.
619
00:30:22,000 --> 00:30:25,160
And so when I am, I let myself
think it and don't like, try to
620
00:30:25,160 --> 00:30:26,960
make myself not think those
things.
621
00:30:27,040 --> 00:30:29,440
That's incredible.
And so you've always been just
622
00:30:29,520 --> 00:30:32,240
naturally upbeat, happy, high
vibe.
623
00:30:32,240 --> 00:30:34,360
It's.
Not, yeah, like I said, you.
624
00:30:34,400 --> 00:30:38,360
Do it sounds unrealistic, but I
mean, yeah, I really am like
625
00:30:38,360 --> 00:30:41,880
hardly ever upset.
And like, if I am, it's usually
626
00:30:41,880 --> 00:30:47,240
not disability.
Related SO do you have any
627
00:30:47,240 --> 00:30:51,840
favorite mottos or quotes that
you like to think about during
628
00:30:51,880 --> 00:30:55,320
the day?
Yes, I actually have one on my
629
00:30:55,320 --> 00:30:57,080
desk, and this was my senior
quote.
630
00:30:57,600 --> 00:31:01,800
It's painted on the Berlin Wall.
And so my mom and I took a trip
631
00:31:01,800 --> 00:31:04,800
to Germany three years ago and
looked at all the art on the
632
00:31:04,800 --> 00:31:07,520
remains of the Berlin Wall.
And there was this one quote
633
00:31:07,520 --> 00:31:11,280
that says many small people who
in many small places do many
634
00:31:11,280 --> 00:31:13,520
small things that can alter the.
Face of the world.
635
00:31:13,600 --> 00:31:16,560
And I loved that quote.
I liked how it was written.
636
00:31:16,560 --> 00:31:19,200
I thought that was very unique
and it stood out to me.
637
00:31:19,200 --> 00:31:21,800
And I feel like, I like how it
can be applied to so many
638
00:31:21,800 --> 00:31:24,400
different things.
It could be applied, um, to what
639
00:31:24,400 --> 00:31:27,440
I'm doing, which I like about
that, but it can be applied like
640
00:31:27,440 --> 00:31:30,400
to the history, like it was on
the Berlin Wall, which I thought
641
00:31:30,400 --> 00:31:33,400
was very interesting.
So I really love that quote.
642
00:31:33,480 --> 00:31:36,400
And then another one I really
love is something like going
643
00:31:36,400 --> 00:31:39,160
through things you never thought
you go through will take you
644
00:31:39,160 --> 00:31:41,200
places you never thought you'd
go to.
645
00:31:41,280 --> 00:31:42,560
Or something like that.
Just so.
646
00:31:42,680 --> 00:31:44,280
True.
For my life, I'm doing things
647
00:31:44,280 --> 00:31:47,840
that I never would have done if
I hadn't become disabled.
648
00:31:47,840 --> 00:31:50,240
And I think that's one of the
most beautiful things about
649
00:31:50,280 --> 00:31:53,880
disability is you really do end
up having all these cool
650
00:31:53,880 --> 00:31:56,400
experiences.
You learn amazing things that
651
00:31:56,400 --> 00:31:59,080
you never would have learned if
you didn't become part of this
652
00:31:59,080 --> 00:32:01,480
community.
So those are two of my absolute
653
00:32:01,520 --> 00:32:03,040
favorite quotes.
I love that.
654
00:32:03,040 --> 00:32:06,320
And I love that you're able to
see disability as a gift.
655
00:32:06,320 --> 00:32:09,280
I see it that way, too.
I look at, you know, my son has
656
00:32:09,280 --> 00:32:12,480
introduced me to a whole world
of special needs children and a
657
00:32:12,480 --> 00:32:14,880
whole special needs population.
And I'm like, it's such a gift
658
00:32:14,880 --> 00:32:18,520
to be able to know what it's
like and to just feel this
659
00:32:18,520 --> 00:32:22,640
unabashed love and kindness that
comes from being, you know, part
660
00:32:22,640 --> 00:32:25,120
of the community.
And I really feel that, like, I
661
00:32:25,120 --> 00:32:27,720
feel so grateful for it.
I feel really like blessed.
662
00:32:27,720 --> 00:32:30,840
And I'm like, wow, He chose me
as his Mama.
663
00:32:30,840 --> 00:32:34,160
I couldn't be happier to be, you
know, the mom of this special
664
00:32:34,160 --> 00:32:35,400
boy.
What do you think that you're
665
00:32:35,400 --> 00:32:38,280
most thankful for?
That's such a hard question.
666
00:32:38,280 --> 00:32:42,160
I mean, I'm most thankful for my
mom because she's like my best
667
00:32:42,160 --> 00:32:44,040
friend.
I always tell her I'm like, I
668
00:32:44,040 --> 00:32:45,720
will never love anyone more than
you.
669
00:32:45,720 --> 00:32:47,200
And she's like, yes, you will,
one day you will.
670
00:32:47,200 --> 00:32:51,280
And I'm like, no, never is she
most thankful for her.
671
00:32:51,320 --> 00:32:53,760
And then I guess just right now,
in terms of my life, I'm so
672
00:32:53,760 --> 00:32:57,040
thankful to be at college
because I always knew I would be
673
00:32:57,040 --> 00:33:00,280
able to go, but I didn't know
how it would really work.
674
00:33:00,280 --> 00:33:03,080
And I knew I would figure it
out, but I just didn't really
675
00:33:03,080 --> 00:33:06,040
know what it would look like.
And so I'm really thankful to be
676
00:33:06,120 --> 00:33:09,520
at the college that I'm at.
But also you're independently
677
00:33:09,600 --> 00:33:11,800
and there's sometimes where I'm
like walking around campus and
678
00:33:11,800 --> 00:33:13,880
I'm just thinking.
About how thankful I am that I'm
679
00:33:13,880 --> 00:33:16,200
here.
So I would say yes, my mom in
680
00:33:16,200 --> 00:33:18,600
terms of people and then college
right now.
681
00:33:18,600 --> 00:33:22,480
Wow, such great things and such
a great person to be thankful
682
00:33:22,480 --> 00:33:24,760
for.
Sarah Todd, thank you for being
683
00:33:24,760 --> 00:33:27,240
you and I appreciate you being
on the show today.
684
00:33:27,360 --> 00:33:30,120
Thank you for having me.
This has been a fabulous
685
00:33:30,120 --> 00:33:31,000
conversation.
00:00:07,040 --> 00:00:10,080
Hello Beautiful Humans.
Welcome to another episode of
2
00:00:10,080 --> 00:00:13,280
Role Models, Juicy Conversations
with Beautiful Humans.
3
00:00:13,280 --> 00:00:16,320
I'm Jennifer Norman, founder of
the Human Beauty Movement and
4
00:00:16,320 --> 00:00:18,320
your host.
This podcast thrives on your
5
00:00:18,320 --> 00:00:21,640
support, so if you like what you
hear, follow us, rate us, review
6
00:00:21,640 --> 00:00:24,800
us, and share this episode with
everyone you know across your
7
00:00:24,800 --> 00:00:27,640
networks.
Today's juicy conversation is
8
00:00:27,640 --> 00:00:30,890
with an extraordinary gal who's
made it her life's work to
9
00:00:30,970 --> 00:00:34,650
educate on disability and
advocate for accessibility.
10
00:00:34,650 --> 00:00:38,250
Sarah Todd Hammer is a 21 year
old, three time published
11
00:00:38,290 --> 00:00:43,090
author, dancer and speaker.
In 2010 she acquired acute
12
00:00:43,090 --> 00:00:47,250
flaccid Myelitis AFM which left
her paralyzed from the neck
13
00:00:47,250 --> 00:00:49,090
down.
She regained the ability to
14
00:00:49,090 --> 00:00:52,570
walk, but she has been paralyzed
in her arms and hands.
15
00:00:52,610 --> 00:00:55,930
Now a junior in college, she's
studying psychology and
16
00:00:55,930 --> 00:00:59,370
communication studies, and she's
built a remarkable presence on
17
00:00:59,370 --> 00:01:04,010
social media, having over
115,000 followers across her
18
00:01:04,010 --> 00:01:06,650
platforms.
Welcome, Sarah Todd.
19
00:01:06,690 --> 00:01:09,370
Hi, Jennifer.
Thank you so much for having me.
20
00:01:09,450 --> 00:01:12,290
I am delighted to have you on as
a guest.
21
00:01:12,290 --> 00:01:15,250
You are what I consider a truly
beautiful human.
22
00:01:15,250 --> 00:01:19,210
So I want to hear all about
yourself, how you grew up and
23
00:01:19,210 --> 00:01:20,490
your family.
What was it like?
24
00:01:20,570 --> 00:01:24,410
I had a great growing up.
I've lived in Atlanta my whole
25
00:01:24,410 --> 00:01:28,650
life and I'm the youngest of
three kids, so I have two older
26
00:01:28,650 --> 00:01:31,970
brothers and then grow.
With my mom and my dad, and we
27
00:01:31,970 --> 00:01:37,050
have Havany's dog named Buddy.
So that was my family and I was
28
00:01:37,050 --> 00:01:40,890
always very close.
With my mom, I was put in ballet
29
00:01:40,890 --> 00:01:45,130
classes when I was three years
old because she wanted me to
30
00:01:45,130 --> 00:01:47,850
dance, because she loved it so
much when she was little.
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00:01:47,850 --> 00:01:50,610
And that's how my love for
ballet grew.
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00:01:50,730 --> 00:01:53,770
And that was something that my
mom and I enjoyed doing
33
00:01:53,770 --> 00:01:56,290
together.
And those are some of my fondest
34
00:01:56,290 --> 00:01:59,370
memories from when I was little.
So I had a great growing up with
35
00:01:59,370 --> 00:02:01,730
my family.
In Atlanta, we have that in
36
00:02:01,730 --> 00:02:03,650
common.
I started ballet and tap when I
37
00:02:03,650 --> 00:02:07,130
was four years old and I always
looked forward to the recital at
38
00:02:07,130 --> 00:02:09,729
the end where you get to get
into those, like adorable
39
00:02:09,729 --> 00:02:11,970
costumes and perform.
And everything.
40
00:02:11,970 --> 00:02:15,330
That's the best?
Absolutely.
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00:02:15,370 --> 00:02:18,450
So now you were about 8 years
old and you were in your ballet
42
00:02:18,450 --> 00:02:21,770
class when you noticed that you
lost the use of your arms and
43
00:02:21,770 --> 00:02:24,010
your hands.
Can you tell us, take us back to
44
00:02:24,010 --> 00:02:25,850
that time about what it felt
like?
45
00:02:25,850 --> 00:02:27,010
What happened?
Yes.
46
00:02:27,010 --> 00:02:29,930
So I was 8 years old and I was
at.
47
00:02:30,050 --> 00:02:32,850
Ballet class.
I had ballet once a week, and I
48
00:02:32,850 --> 00:02:36,330
was super excited for that
particular class because we were
49
00:02:36,330 --> 00:02:39,490
trying on our recital costumes,
which as you just mentioned, was
50
00:02:39,490 --> 00:02:42,970
always super fun.
And we were going around the
51
00:02:43,250 --> 00:02:46,530
studio, kind of just jumping
around in our costumes, having
52
00:02:46,530 --> 00:02:48,810
fun.
I was doing leaps with one of my
53
00:02:48,810 --> 00:02:52,690
friends and then I noticed that
all of a sudden I had a really
54
00:02:52,730 --> 00:02:57,610
excruciating head and neck ache
and it got so bad to the point
55
00:02:57,610 --> 00:02:59,970
that I was crying, which was
really unlikely.
56
00:03:00,050 --> 00:03:04,050
Me and my mom was looking
through the window outside the
57
00:03:04,050 --> 00:03:07,970
studio to see what was going on,
and then she noticed that
58
00:03:07,970 --> 00:03:11,570
something didn't look right.
So we decided that I was just
59
00:03:11,570 --> 00:03:13,690
going to go home and rest for a
bit.
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00:03:13,730 --> 00:03:18,290
So she comes in and gets me, and
I go outside the studio and I'm
61
00:03:18,290 --> 00:03:21,410
sitting on the bench trying to
put on my shoes to go outside.
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00:03:21,490 --> 00:03:25,890
And I leaned down a bit to pull
up my tights and adjust to them.
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00:03:25,930 --> 00:03:28,610
And then all of a sudden, my
arms and hands just stopped
64
00:03:28,610 --> 00:03:29,850
working.
And just like.
65
00:03:30,050 --> 00:03:32,930
Fell limp.
And so I turned to my mom and I
66
00:03:32,930 --> 00:03:34,890
told her that my arms didn't
work.
67
00:03:34,890 --> 00:03:37,850
And so she was obviously like,
OK, we're not going home.
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00:03:37,890 --> 00:03:40,770
And the hospital at that point
was pretty far away.
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00:03:40,770 --> 00:03:44,130
And it was about 4:00 PM in
afternoon, so there would have
70
00:03:44,130 --> 00:03:45,450
been a lot of traffic getting
there.
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00:03:45,450 --> 00:03:49,570
So we went to the urgent care
facility that was about a 10
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00:03:49,570 --> 00:03:53,010
minute drive away.
And by the time we got there,
73
00:03:53,010 --> 00:03:56,250
just about 10 minutes later, I
couldn't walk, even though I
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00:03:56,250 --> 00:03:59,370
could still move my legs.
So things were progressing,
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00:03:59,450 --> 00:04:00,450
really.
Fast.
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00:04:00,490 --> 00:04:03,850
And we went inside.
My mom explained what was
77
00:04:03,850 --> 00:04:07,330
happening and they flew me by
helicopter to the hospital,
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00:04:07,330 --> 00:04:10,170
which was a scary experience, of
course.
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00:04:10,650 --> 00:04:14,530
And then I was in the emergency
room for six hours and I
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00:04:14,530 --> 00:04:17,970
couldn't walk or sit up or move
my arms and hands.
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00:04:18,010 --> 00:04:22,130
And the doctor gave me Motrin
for my neck pain, but he didn't
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00:04:22,130 --> 00:04:25,130
think that anything was wrong.
And so, after being there for
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00:04:25,130 --> 00:04:28,890
six hours, he told my parents to
bring me back in the morning if
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00:04:28,890 --> 00:04:32,330
I wasn't better And then.
He sent me home and we went
85
00:04:32,330 --> 00:04:34,970
home.
And then the next morning I woke
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00:04:34,970 --> 00:04:37,090
up and then couldn't move my
legs either.
87
00:04:37,090 --> 00:04:39,850
So I was completely paralyzed
from the neck down.
88
00:04:39,850 --> 00:04:42,610
And this was all within the span
of about 16 hours.
89
00:04:42,610 --> 00:04:46,090
So my mom called an ambulance
and then we went back to the
90
00:04:46,130 --> 00:04:49,170
very same hospital by ambulance
the next morning.
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00:04:49,170 --> 00:04:52,570
And later that day I was
diagnosed with transverse
92
00:04:52,570 --> 00:04:56,930
myelitis, or TM.
At the time, AFM was not a known
93
00:04:56,970 --> 00:04:59,090
thing.
That term wasn't even coined in
94
00:04:59,090 --> 00:05:02,810
2010.
So I was not diagnosed with AFM,
95
00:05:02,810 --> 00:05:06,610
but I was re diagnosed with AFM
in 2018.
96
00:05:06,610 --> 00:05:09,690
And AFM and TM are pretty
similar.
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00:05:10,010 --> 00:05:13,130
They're all kind of part of the
same group of neuroimmunological
98
00:05:13,130 --> 00:05:16,250
disorders.
So TM wasn't too far off of a
99
00:05:16,250 --> 00:05:18,850
diagnosis, but it was not what I
had.
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00:05:19,490 --> 00:05:23,490
And so leading up until that day
that you all of a sudden started
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00:05:23,490 --> 00:05:26,930
to feel either numbness or that
you couldn't move your hands and
102
00:05:26,930 --> 00:05:29,650
your arms properly, was there
any illness?
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00:05:29,650 --> 00:05:32,650
Was there or anything that would
give you an indication that
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00:05:32,650 --> 00:05:35,210
something could have been
happening or was it completely
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00:05:35,210 --> 00:05:37,170
out of the blue?
It was completely out of the
106
00:05:37,170 --> 00:05:39,250
blue.
I didn't have any symptoms.
107
00:05:39,250 --> 00:05:43,170
I wasn't sick, I wasn't tired.
I didn't have any numbness or
108
00:05:43,170 --> 00:05:45,410
tingling.
It was just the headache came
109
00:05:45,410 --> 00:05:47,770
and then the arms and hands
stopped working and it was just,
110
00:05:47,890 --> 00:05:50,730
like, really quick.
So there was nothing out of the
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00:05:50,730 --> 00:05:52,490
ordinary up until then.
Wow.
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00:05:52,970 --> 00:05:57,370
I know how difficult that time
must have been for both you,
113
00:05:57,410 --> 00:06:01,010
your parents, your brothers,
everybody who loved you because
114
00:06:01,010 --> 00:06:04,570
the unknown is always difficult
to deal with.
115
00:06:04,570 --> 00:06:07,090
Sometimes when you get a
diagnosis and you're and you
116
00:06:07,090 --> 00:06:09,610
know about it ahead of time, if
there's a little bit of
117
00:06:09,610 --> 00:06:13,130
assurance, but the not knowing
how this happened and you start
118
00:06:13,130 --> 00:06:15,210
asking yourself a lot of
questions.
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00:06:15,250 --> 00:06:18,810
There are a lot of, you know
reasons why people go through
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00:06:18,810 --> 00:06:22,650
very, very hard times when you
know just like dealing with with
121
00:06:22,650 --> 00:06:25,290
a diagnosis like that after your
diagnosis.
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00:06:25,330 --> 00:06:28,610
I know that you know you had
this experience, but what was it
123
00:06:28,610 --> 00:06:30,810
like?
And how long was it that you
124
00:06:30,810 --> 00:06:34,210
were feeling paralysis in your
arms and your legs?
125
00:06:34,370 --> 00:06:40,010
So I was in the intensive care
unit for 12 days after we went
126
00:06:40,010 --> 00:06:43,650
back to the hospital, and then I
was on the inpatient
127
00:06:43,650 --> 00:06:46,970
rehabilitation unit for about 5
weeks.
128
00:06:47,050 --> 00:06:51,970
And while I was in the ICU, I
had plasmapheresis treatment
129
00:06:51,970 --> 00:06:56,370
done which helped with regaining
my leg motion back.
130
00:06:56,370 --> 00:06:59,890
After I had the first of five
treatments, I moved my.
131
00:07:00,050 --> 00:07:02,450
Big toe.
So that seemed to be helping.
132
00:07:02,490 --> 00:07:07,690
And once I moved to the
inpatient rehab floor, I started
133
00:07:07,690 --> 00:07:11,650
using a manual wheelchair that I
pushed with my legs because I
134
00:07:11,650 --> 00:07:13,330
couldn't move the wheels with my
arms.
135
00:07:13,410 --> 00:07:16,250
So they kind of got me up and
going in that respect.
136
00:07:16,290 --> 00:07:20,090
And I then started to walk with
assistance.
137
00:07:20,130 --> 00:07:23,690
I would wear a gait belt and my
physical therapist would hold on
138
00:07:23,690 --> 00:07:25,370
to me and we would practice
walking.
139
00:07:25,450 --> 00:07:27,930
And I of course got tired very
quickly and needed a lot of
140
00:07:27,930 --> 00:07:29,970
help, but they kind of got me up
and going.
141
00:07:30,250 --> 00:07:32,650
And so just doing a lot of
physical and occupational
142
00:07:32,650 --> 00:07:36,010
therapy helped with that.
And at the end of my two-month
143
00:07:36,010 --> 00:07:39,330
stay in the hospital, I was able
to walk out of the hospital with
144
00:07:39,330 --> 00:07:44,450
some assistance and I had
regained a little bit of arm and
145
00:07:44,450 --> 00:07:47,170
hand motion during my rehab
stay.
146
00:07:47,330 --> 00:07:51,210
So I left the hospital with
being able to move my right hand
147
00:07:51,210 --> 00:07:55,010
a little bit and having a tiny
bit of motion in certain areas
148
00:07:55,010 --> 00:07:58,170
of my arms.
Essentially I probably regained
149
00:07:58,170 --> 00:08:01,410
some strength for about.
Two years after I left the
150
00:08:01,410 --> 00:08:04,370
hospital, but basically for
about the last 10 years.
151
00:08:04,370 --> 00:08:08,450
I've kind of been on the same
level of strength since then, So
152
00:08:08,530 --> 00:08:12,170
I have very, like, spotty
paralysis in my arms and hands.
153
00:08:12,170 --> 00:08:14,050
I can't move my left hand at
all.
154
00:08:14,050 --> 00:08:17,850
My right hand is very weak, but
I can move it and I can't lift
155
00:08:17,850 --> 00:08:19,410
my shoulders up.
Really.
156
00:08:19,410 --> 00:08:22,530
It's hard to explain unless you
kind of interact with me or
157
00:08:22,530 --> 00:08:26,130
watch me move, but I have spotty
paralysis in my arms and hands
158
00:08:26,130 --> 00:08:28,290
today.
So do you still continue on with
159
00:08:28,290 --> 00:08:32,570
physical and occupational
therapies even to today or is
160
00:08:32,570 --> 00:08:35,250
that something that you kind of
halted because you're pretty
161
00:08:35,250 --> 00:08:39,130
much OK with the way that the
motions are and it's pretty much
162
00:08:39,130 --> 00:08:41,450
stabilized?
Back when everything first
163
00:08:41,450 --> 00:08:43,289
happened, I of course did a lot
of therapy.
164
00:08:43,370 --> 00:08:46,610
And I did a lot of therapy for a
few years after getting
165
00:08:46,610 --> 00:08:49,610
diagnosed.
But even back then, within the
166
00:08:49,610 --> 00:08:52,370
first few months, I was kind of
like, OK, like, I don't really
167
00:08:52,370 --> 00:08:54,770
care about doing therapy.
I just kind of want to go back
168
00:08:54,770 --> 00:08:58,530
to my life and do what you
wanted to do.
169
00:08:58,530 --> 00:09:01,650
Yeah, So that was.
Really my top priority.
170
00:09:01,690 --> 00:09:04,370
I also understood that I needed
to do it on some level if I
171
00:09:04,370 --> 00:09:07,050
wanted to get back to dancing.
And there was a moment in
172
00:09:07,050 --> 00:09:10,810
physical therapy a few months
after everything happened where
173
00:09:10,890 --> 00:09:13,410
I was able to stand on my tip
toes and that kind of made me
174
00:09:13,410 --> 00:09:15,050
think that I could start dancing
again.
175
00:09:15,370 --> 00:09:18,490
But at the same time, I was not
into doing therapy.
176
00:09:18,490 --> 00:09:22,210
I just kind of wanted to accept
things and move on with my 8
177
00:09:22,210 --> 00:09:24,290
year old life.
And that's how I am today.
178
00:09:24,290 --> 00:09:26,890
Like, I'm not really interested
in therapy.
179
00:09:26,970 --> 00:09:29,970
Mostly what therapy is helpful
with now is.
180
00:09:30,090 --> 00:09:32,050
Finding ways for me to do
things.
181
00:09:32,050 --> 00:09:35,730
So I really like asking, like my
occupational therapist for
182
00:09:35,730 --> 00:09:39,450
advice on how I could maybe
improve, like brushing my hair,
183
00:09:39,450 --> 00:09:42,850
or like improve my workspace for
when I'm doing homework.
184
00:09:42,850 --> 00:09:46,290
But I'm not interested in really
recovery based therapy because
185
00:09:46,370 --> 00:09:49,490
also at this point in my
diagnosis that's not even
186
00:09:49,490 --> 00:09:52,130
realistic.
So I moved on from that pretty
187
00:09:52,130 --> 00:09:55,170
quickly in my head, even though
I still did it for a few years
188
00:09:55,170 --> 00:09:58,010
after everything happened.
Yeah, I know From having a
189
00:09:58,050 --> 00:10:02,090
disabled son myself, you become
a master at just life hacking.
190
00:10:02,330 --> 00:10:04,650
You just yes, You know, we call
it Macgyvering.
191
00:10:04,650 --> 00:10:06,210
It's like we'll just figure
things out.
192
00:10:06,210 --> 00:10:09,690
We'll like tie things together.
We'll make things easier than
193
00:10:09,730 --> 00:10:10,330
you know.
But.
194
00:10:10,450 --> 00:10:13,730
But we have to do it very
customized because he's an N of
195
00:10:13,730 --> 00:10:15,490
1.
You're an N of 1, and nobody's
196
00:10:15,490 --> 00:10:17,930
like you.
And so you kind of make up your
197
00:10:17,930 --> 00:10:20,530
own ways of doing things to the
best of your ability.
198
00:10:20,530 --> 00:10:22,690
And sometimes you get those
little, oh, that's kind of cool.
199
00:10:22,690 --> 00:10:24,360
Maybe I'll try that.
Yeah.
200
00:10:24,440 --> 00:10:27,560
You kind of figure out you know
and invent things on your own,
201
00:10:27,560 --> 00:10:28,560
don't you?
Yes.
202
00:10:28,600 --> 00:10:32,000
I mean, humans are amazing and
adapting, and I think a lot of
203
00:10:32,000 --> 00:10:34,880
people think if they ever became
disabled, they wouldn't be able
204
00:10:34,880 --> 00:10:38,040
to figure out how to do things.
But it's really like the case
205
00:10:38,160 --> 00:10:41,080
that if you become disabled, you
kind of just work with it and
206
00:10:41,080 --> 00:10:43,080
figure out ways to do certain
things.
207
00:10:43,200 --> 00:10:45,680
And if you need help with
certain things, that's OK too.
208
00:10:45,680 --> 00:10:48,560
You just kind of learn kind of
what you can and can't do and go
209
00:10:48,560 --> 00:10:50,360
with it.
Yeah, absolutely.
210
00:10:50,440 --> 00:10:52,760
That's amazing.
So you have to tell me about
211
00:10:52,760 --> 00:10:55,680
getting back to dancing.
I love that you were so
212
00:10:55,680 --> 00:10:57,360
tenacious.
And you're like, this is what I
213
00:10:57,360 --> 00:10:58,920
want to do.
I'm going to figure out how to
214
00:10:58,920 --> 00:11:00,880
do it.
You know, What point did you go
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00:11:00,880 --> 00:11:01,800
back to?
Ballet.
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So while I was in the ICU, I had
my dance companies DVD's like
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playing on the TV in there, like
I was watching them and it was
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00:11:10,680 --> 00:11:14,600
of course really heavily on my
mind and I had had plans to
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00:11:14,600 --> 00:11:18,440
audition for my dance companies.
Like real, like company.
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Like being a member of the
company.
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Because you could do that once
you were nine years old and they
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were actually letting me.
Audition early at 8 years old,
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and I really wanted to be able
to make those auditions.
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And then when that deadline
passed, because I was in the
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hospital, my goal was to be able
to go to my dance recital.
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That was in June and everything
happened to me in April, but
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that deadline passed and so then
I was like, OK, I didn't achieve
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those things, but I really
wanted to just get back to
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dancing just because it was
something I loved and I wanted
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to just be able to do it as a
hobby at the very least.
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So my therapist knew that that
was a goal of mine.
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So when I stood on my tiptoe.
Goes in therapy.
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Once I got out of the hospital,
they were of course really
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excited for me and they tried to
like incorporate doing like Just
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Dance on the Wii and stuff to
make therapy fun because they
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knew I loved dancing.
So they were supportive of that.
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But the day after I stood on my
tip toes in therapy, I went home
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from therapy and then I had my
dad like helped me set up my
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dance DVD's I would always dance
to in our family room.
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And I remember he wanted to stay
in the room and watch me and
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make sure I was OK And I was
like, no.
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Fine, because I never liked when
my family watched unless I
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wanted them to.
Yeah.
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And he went and sat in the next
room over and I'm sure he was
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scared of me falling or
something.
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00:12:33,120 --> 00:12:35,480
But I just did like one quick
little dance.
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00:12:35,520 --> 00:12:38,760
And I remember being a little
bit unhappy with how I did
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things because of course it
wasn't like normal, but I was
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super proud that I was able to
do it.
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00:12:44,320 --> 00:12:47,520
And then as I kept dancing more
and more, I think it helped me
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get stronger for one thing,
physically and then also
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mentally.
But I started to realize that I
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could just change the.
Moves of the dances I already
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knew to make them fit my body's
abilities.
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00:12:59,240 --> 00:13:01,760
So I guess I just kind of
realized I was already
256
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subconsciously doing that on
some level.
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00:13:04,240 --> 00:13:07,280
And I was like, I could actually
make this into my own hobby of
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choreography.
And that's how I just decided to
259
00:13:10,160 --> 00:13:13,040
start choreographing dances,
because they then became
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00:13:13,040 --> 00:13:16,480
something that was really unique
to me and something I could do
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on my own.
And I realized that my
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disability was kind of serving
as like the driving creative
263
00:13:21,680 --> 00:13:24,120
force for my dancing.
And that was really.
264
00:13:24,200 --> 00:13:26,360
Really cool.
And that made me discover a
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00:13:26,360 --> 00:13:28,720
whole new hobby I probably
wouldn't have discovered if I
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hadn't become disabled.
Wow.
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00:13:30,400 --> 00:13:32,880
That is so great.
And I think that it's a great
268
00:13:32,880 --> 00:13:36,680
lesson in the fact that, you
know, dancing is something that
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is there to bring you joy.
It's a release.
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00:13:39,640 --> 00:13:42,120
It's very cathartic.
And so whether or not you feel
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00:13:42,120 --> 00:13:44,880
like somebody else is watching
and you're doing a performance,
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00:13:44,880 --> 00:13:47,240
you know, there's certainly that
side where you're doing it to
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00:13:47,320 --> 00:13:49,360
entertain.
But then on the flip side,
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00:13:49,360 --> 00:13:51,640
there's just something about
moving the body.
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00:13:51,640 --> 00:13:56,520
And yeah, it might not look the
same same way, but adapting is
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00:13:56,520 --> 00:13:57,880
is wonderful.
And.
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00:13:57,960 --> 00:14:02,040
And not judging yourself for not
necessarily doing it right,
278
00:14:02,040 --> 00:14:04,880
always wanting to be better.
But yeah, there's that fine line
279
00:14:04,880 --> 00:14:07,400
between, you know, criticizing
yourself and saying, oh, I
280
00:14:07,400 --> 00:14:08,760
didn't do that the way that I
wanted to.
281
00:14:08,760 --> 00:14:12,640
But yeah, yeah, getting a little
bit, you know, better and just
282
00:14:12,640 --> 00:14:15,960
feeling that you're always
getting joy out of it is, you
283
00:14:15,960 --> 00:14:19,280
know, the best thing ever.
Oh, that's wonderful.
284
00:14:19,280 --> 00:14:22,600
I love that.
And so, gosh, now you are an
285
00:14:22,600 --> 00:14:25,160
advocate for people who are
living with disabilities.
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00:14:25,160 --> 00:14:28,040
And, you know, it's empowering
you to be your own advocate
287
00:14:28,040 --> 00:14:30,960
because I think that in a lot of
your videos you're showing the
288
00:14:30,960 --> 00:14:34,120
world what it's like to be you.
You're pretty much helping to
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00:14:34,160 --> 00:14:37,520
educate on what life is like in
in the world of Sarah Todd.
290
00:14:37,520 --> 00:14:40,960
Not necessarily asking for help,
not necessarily, you know,
291
00:14:40,960 --> 00:14:43,920
asking for advice, which I know
you probably get plenty of.
292
00:14:43,920 --> 00:14:47,080
And not necessarily doing it to
be an inspiration, but really
293
00:14:47,080 --> 00:14:49,360
just being an advocate and
saying this is what life is
294
00:14:49,360 --> 00:14:50,880
like.
And hey, there are certain
295
00:14:50,880 --> 00:14:54,120
things that could be made easier
and more accessible for people
296
00:14:54,240 --> 00:14:56,920
who have conditions such as mine
or others.
297
00:14:56,960 --> 00:15:00,720
But yeah, And a lot of people
aren't really necessarily aware
298
00:15:00,720 --> 00:15:02,480
of it.
And so they appreciate having a
299
00:15:02,480 --> 00:15:05,240
glimpse into what it's like and
saying, oh gosh, you know, if I
300
00:15:05,240 --> 00:15:08,240
could be more mindful and if I
come across somebody like Sarah
301
00:15:08,240 --> 00:15:11,160
Todd or anybody else, then I'll
kind of know what to do or not
302
00:15:11,160 --> 00:15:13,040
know what to say.
It may not be perfect because
303
00:15:13,040 --> 00:15:16,240
that person might not be exactly
the same mindset that Sarah is,
304
00:15:16,240 --> 00:15:18,760
which and you're extremely
positive, which is wonderful.
305
00:15:18,760 --> 00:15:21,640
But I think that people are
really, you know, gravitating to
306
00:15:21,640 --> 00:15:24,720
your voice and your expression.
Did you always know that you
307
00:15:24,720 --> 00:15:27,760
wanted to use your voice to help
others to create positive
308
00:15:27,760 --> 00:15:31,120
change?
So pretty shortly after I became
309
00:15:31,120 --> 00:15:35,080
disabled, I got into disability
advocacy and that all kind of
310
00:15:35,080 --> 00:15:38,240
started in 2012.
So just two years after,
311
00:15:38,240 --> 00:15:42,760
everything happened when I met
one of my now best friends who
312
00:15:42,760 --> 00:15:46,080
was also diagnosed with
transverse myelitis, which we
313
00:15:46,080 --> 00:15:47,400
thought I had at the time,
right?
314
00:15:47,560 --> 00:15:50,480
And we met in person.
Our moms had been talking on
315
00:15:50,480 --> 00:15:53,840
like a Facebook support group,
and then we were both at Johns
316
00:15:53,840 --> 00:15:55,640
Hopkins.
For medical treatments around
317
00:15:55,640 --> 00:15:58,240
the same time.
And we met in person and she was
318
00:15:58,240 --> 00:16:01,560
14 and I was 10.
But we got along really well and
319
00:16:01,560 --> 00:16:03,880
related to each other on so many
levels.
320
00:16:03,880 --> 00:16:09,000
And shortly after that we just
decided to write up our stories
321
00:16:09,000 --> 00:16:12,040
with our disability journeys and
put them in a book together.
322
00:16:12,040 --> 00:16:15,560
So we did that and then
published it when I was 11 years
323
00:16:15,560 --> 00:16:17,720
old.
And then we wrote two more books
324
00:16:17,720 --> 00:16:20,040
and made a trilogy out of our
lives.
325
00:16:20,200 --> 00:16:24,120
And those were published when I
was 14 and 17 and so writing.
326
00:16:24,200 --> 00:16:27,360
The books is kind of what made
me realize that I could do a lot
327
00:16:27,360 --> 00:16:30,080
with disability advocacy.
And it also helped me realize
328
00:16:30,080 --> 00:16:32,560
that I love to write, which I
didn't know before.
329
00:16:32,560 --> 00:16:35,280
I did that.
And that's how I got started
330
00:16:35,440 --> 00:16:39,440
writing articles for news
publications and then speaking.
331
00:16:39,440 --> 00:16:42,920
And I did book signings and I
spoke on podcasts, I spoke at
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00:16:42,920 --> 00:16:45,440
schools.
I did little like mini
333
00:16:45,440 --> 00:16:48,080
documentaries.
And so that's kind of how all of
334
00:16:48,080 --> 00:16:51,360
that advocacy started.
And I always was open about my
335
00:16:51,360 --> 00:16:54,000
disability on my social media.
I made my.
336
00:16:54,200 --> 00:16:57,960
Social media public When I was
in high school, probably like
337
00:16:58,080 --> 00:17:01,480
9th or 10th grade, and I
realized people were interested
338
00:17:01,480 --> 00:17:04,240
in certain things about my life.
So I always talked about it on
339
00:17:04,240 --> 00:17:08,119
some level on my social media.
But then in March 2020 when
340
00:17:08,119 --> 00:17:11,040
COVID hit and I didn't have
anything else to do, I had
341
00:17:11,040 --> 00:17:14,040
downloaded TikTok and TikTok was
really taking off around that
342
00:17:14,040 --> 00:17:16,440
time.
And there was a trend on there
343
00:17:16,440 --> 00:17:19,920
where you would put up both your
hands and say put a finger down
344
00:17:19,920 --> 00:17:23,000
if and then tell a story that
was super specific to you and
345
00:17:23,000 --> 00:17:24,440
then at the end put a finger.
Down.
346
00:17:24,520 --> 00:17:27,880
And I was like, Oh my gosh, I
could do this with my AFM story.
347
00:17:27,880 --> 00:17:30,720
So I just randomly did that one
day and everyone loved it.
348
00:17:30,720 --> 00:17:33,360
It got over 1,000,000 views and
I was like, wow, so people are
349
00:17:33,360 --> 00:17:35,760
interested in this.
And that's when I started
350
00:17:35,760 --> 00:17:38,160
posting a lot.
And that's how my presence grew
351
00:17:38,160 --> 00:17:40,400
on TikTok, YouTube and
Instagram.
352
00:17:40,400 --> 00:17:42,440
And it's kind of just taken off
from there.
353
00:17:42,440 --> 00:17:45,400
I feel like I've gotten more
creative with the ideas that
354
00:17:45,400 --> 00:17:48,600
I've thought of things to post.
I realized that there are things
355
00:17:48,600 --> 00:17:51,040
that might not seem super
interesting to me, but that
356
00:17:51,120 --> 00:17:52,880
other people love to learn
about.
357
00:17:52,920 --> 00:17:55,640
And so as I'm going through my.
Day sometimes I'm like, oh, I'll
358
00:17:55,640 --> 00:17:57,320
just film this.
I think someone would find it
359
00:17:57,320 --> 00:18:00,680
interesting and people do.
So that's kind of how that
360
00:18:00,800 --> 00:18:03,080
evolved, I guess that's
incredible.
361
00:18:03,120 --> 00:18:07,000
And so, yeah, it seems like what
you're sharing is so relatable
362
00:18:07,000 --> 00:18:10,360
as life of a college student,
things that, you know, like
363
00:18:10,360 --> 00:18:13,800
topics like ableism,
discrimination, the importance
364
00:18:13,800 --> 00:18:17,120
of accessibility.
And so do you feel that like the
365
00:18:17,200 --> 00:18:20,560
act of doing your social media
has also just helped you in
366
00:18:20,560 --> 00:18:24,880
terms of like your catharsis or
feeling confident and feeling
367
00:18:24,880 --> 00:18:29,120
like, yeah, I can actually be a
voice for people who are
368
00:18:29,120 --> 00:18:32,320
disabled and maybe make some
real change in the future?
369
00:18:32,560 --> 00:18:35,400
Yeah, I mean, I definitely get
great feedback from a lot of
370
00:18:35,400 --> 00:18:37,720
people, even like with my books
as well.
371
00:18:37,720 --> 00:18:40,200
People saying that my books have
made a difference for them,
372
00:18:40,280 --> 00:18:44,720
which is always nice to hear.
And it's cool just learning what
373
00:18:44,720 --> 00:18:47,360
people are interested in.
Because like I said, there are
374
00:18:47,360 --> 00:18:49,320
things that I think might not be
that interesting.
375
00:18:49,320 --> 00:18:51,600
And then I post them and people
are like, Oh my gosh, I loved
376
00:18:51,600 --> 00:18:54,120
learning this or I love seeing
into your life.
377
00:18:54,280 --> 00:18:57,560
And a good example of something
of that nature is the other day
378
00:18:57,560 --> 00:19:00,600
I just posted a video talking
about how one of the employees
379
00:19:00,600 --> 00:19:03,600
at my college cafe helped me
open my water bottle and my
380
00:19:03,600 --> 00:19:06,960
ketchup and everyone loved that.
I got like 400,000 views.
381
00:19:06,960 --> 00:19:09,920
People like, oh, that's so nice.
Like I love that you are able to
382
00:19:09,920 --> 00:19:11,840
ask for help.
So just things like that are
383
00:19:11,840 --> 00:19:15,520
nice to see the feedback on.
And yeah, it's nice knowing and
384
00:19:15,680 --> 00:19:18,600
making a difference.
And I also learn as I'm doing it
385
00:19:18,600 --> 00:19:21,960
too, because sometimes I'll post
something and then some people
386
00:19:21,960 --> 00:19:24,120
leave really thoughtful comments
and then.
387
00:19:24,200 --> 00:19:26,800
And we have like a dialogue
about the whole topic.
388
00:19:26,800 --> 00:19:29,880
And so I'm learning as I'm doing
it too, which I really like.
389
00:19:29,920 --> 00:19:32,680
Yeah, sometimes in TikTok it's
like I'm here for the comments
390
00:19:32,720 --> 00:19:36,040
and I'm just go through and I I
love the humor.
391
00:19:36,040 --> 00:19:38,360
I love some of the things that
people say the way that they
392
00:19:38,360 --> 00:19:41,680
support with such humor.
It's actually really, really
393
00:19:41,680 --> 00:19:43,400
great.
And the interesting thing that
394
00:19:43,400 --> 00:19:46,200
I've noticed as I was watching
some of your videos is that you
395
00:19:46,200 --> 00:19:49,400
are learning more about yourself
and you are evolving to where
396
00:19:49,400 --> 00:19:52,360
before you might have been a
little bit shy to ask for help,
397
00:19:52,360 --> 00:19:55,160
but now you feel more confident
about asking for help.
398
00:19:55,160 --> 00:19:58,360
And so it's really nice for
people to know that, you know,
399
00:19:58,360 --> 00:20:00,320
you're on your own journey as
well.
400
00:20:00,320 --> 00:20:03,320
And the thing that I have
noticed of having a disabled son
401
00:20:03,320 --> 00:20:05,360
is that a lot of people were
just scared.
402
00:20:05,360 --> 00:20:08,880
They were intimidated and shy to
even approach somebody for fear
403
00:20:08,880 --> 00:20:11,320
that they might say the wrong
thing, that they might do the
404
00:20:11,320 --> 00:20:13,920
wrong thing, they might just
mess up and it would be just
405
00:20:13,920 --> 00:20:16,120
embarrassing and shameful for
everybody involved.
406
00:20:16,120 --> 00:20:17,960
But that's not necessarily the
case.
407
00:20:17,960 --> 00:20:20,560
I always say like air on the
side of asking.
408
00:20:20,640 --> 00:20:22,600
It's like, hey, oh, what's going
on?
409
00:20:22,600 --> 00:20:24,040
But not doing it in a way like
oh.
410
00:20:24,200 --> 00:20:27,640
What's wrong with you?
Like, oh, I'm gonna pray for
411
00:20:27,640 --> 00:20:28,920
you.
It's not that near like know
412
00:20:28,920 --> 00:20:32,240
that this is a human being and
there is a sense of dignity and
413
00:20:32,240 --> 00:20:35,160
empowerment that, you know,
everybody wants to feel.
414
00:20:35,200 --> 00:20:37,640
And so just having that
conversation and saying, hey,
415
00:20:37,640 --> 00:20:41,200
need a hand or hey, you know,
can I help with that is that you
416
00:20:41,200 --> 00:20:42,520
know something completely.
OK.
417
00:20:42,560 --> 00:20:44,880
The word disabled.
A lot of people are like, oh, I
418
00:20:44,880 --> 00:20:47,240
don't want to say the word
disabled differently.
419
00:20:47,240 --> 00:20:48,720
Able to something.
I hate that.
420
00:20:49,040 --> 00:20:50,760
Yeah, it's like, don't pussyfoot
around it.
421
00:20:50,760 --> 00:20:54,320
Come on.
Just like, exactly OK to say
422
00:20:54,320 --> 00:20:57,520
disabled and to say disability.
I think that most people feel
423
00:20:57,520 --> 00:20:59,160
that way.
Some people, again, I don't want
424
00:20:59,160 --> 00:21:01,600
to make a blank statement, but
you know, some people may get
425
00:21:01,600 --> 00:21:03,960
offended by it.
But for the most part, it's just
426
00:21:03,960 --> 00:21:07,520
an easier way to say this is how
I am, this is how I know that
427
00:21:07,520 --> 00:21:09,560
I'm allowed to park in this spot
and.
428
00:21:10,680 --> 00:21:13,720
Exactly.
All of those things.
429
00:21:14,000 --> 00:21:17,040
So you're also the president of
the Disability Alliance at your
430
00:21:17,040 --> 00:21:22,280
college.
So I'm a junior at college now
431
00:21:22,320 --> 00:21:19,160
and when I was applying to.
Can you tell us more about that?
432
00:21:24,200 --> 00:21:29,120
My school, I knew that they had
a disability club because I was
433
00:21:29,120 --> 00:21:32,720
talking to a current student and
she was a part of it and it had
434
00:21:32,720 --> 00:21:36,880
a different name at the time.
But when I got to college, I got
435
00:21:36,880 --> 00:21:40,880
in contact with the president of
the current club and shared some
436
00:21:40,880 --> 00:21:44,080
of my ideas with her and told
her that I wasn't fond of the
437
00:21:44,080 --> 00:21:46,400
name of the club.
It just kind of sounded a little
438
00:21:46,400 --> 00:21:48,800
condescending.
It had the words diverse
439
00:21:48,800 --> 00:21:52,080
abilities in there, so we were
not a fan of the name of the
440
00:21:52,080 --> 00:21:54,120
club.
So we had some conversations.
441
00:21:54,200 --> 00:21:57,200
About changing the name and
revamping the club a little bit.
442
00:21:57,280 --> 00:22:01,480
And so last year, my sophomore
year, we did that and changed
443
00:22:01,480 --> 00:22:04,200
the name and kind of came up
with some new goals for the
444
00:22:04,200 --> 00:22:06,800
club.
And the president of the club
445
00:22:06,800 --> 00:22:10,960
was a senior last year and I was
a sophomore, so she made me Co
446
00:22:10,960 --> 00:22:13,680
president with her.
And then when she graduated last
447
00:22:13,680 --> 00:22:15,800
year, I became president this
year.
448
00:22:15,840 --> 00:22:19,400
And we've done some cool things.
We're trying to focus on
449
00:22:19,400 --> 00:22:23,880
disability culture and identity.
So we felt that that was a big.
450
00:22:24,200 --> 00:22:27,440
Need at my school because we're
trying to get people to realize
451
00:22:27,440 --> 00:22:31,320
that disability is diversity and
we're seeing that disabled
452
00:22:31,320 --> 00:22:34,080
students want that as well.
So that's a big focus of our
453
00:22:34,080 --> 00:22:36,160
club.
But we also have the focus on
454
00:22:36,200 --> 00:22:39,960
educating the campus community.
So we've done an event that was
455
00:22:39,960 --> 00:22:43,000
a service dog etiquette
education event where two
456
00:22:43,000 --> 00:22:45,760
students with service dogs
talked about their experience
457
00:22:45,760 --> 00:22:48,400
and like what to do and not to
do around service dogs.
458
00:22:48,440 --> 00:22:51,560
And every year we do an
accessibility scavenger hunt
459
00:22:51,600 --> 00:22:54,120
where we go to a building on
campus and find.
460
00:22:54,200 --> 00:22:56,480
Things about it that are
accessible and then things that
461
00:22:56,480 --> 00:22:59,560
are inaccessible and then
whoever finds like the most
462
00:22:59,560 --> 00:23:03,120
creative things when surprised.
We on Friday are doing
463
00:23:03,120 --> 00:23:07,480
disability trivia, so we'll have
some trivia questions written
464
00:23:07,560 --> 00:23:11,440
and people can come and get some
free food and play trivia to
465
00:23:11,440 --> 00:23:14,560
test their disability knowledge.
So just do like fun events like
466
00:23:14,560 --> 00:23:17,920
that and a variety of different
things and we have a good amount
467
00:23:17,920 --> 00:23:20,000
of people who come to the
events.
468
00:23:20,000 --> 00:23:24,000
Our education event had about 40
attendees and it was open to
469
00:23:24,000 --> 00:23:25,480
the.
Whole campus, so anyone could
470
00:23:25,480 --> 00:23:28,520
come, and it's nice seeing that
people are interested in
471
00:23:28,520 --> 00:23:30,800
learning about disability.
I feel like there's a good
472
00:23:30,800 --> 00:23:34,120
amount of people here who are
showing an interest, which gives
473
00:23:34,120 --> 00:23:36,200
me hope.
That's amazing.
474
00:23:36,200 --> 00:23:39,200
Well, congratulations on all
those fun activities and for
475
00:23:39,200 --> 00:23:40,800
such a great turn out.
Thank you.
476
00:23:41,520 --> 00:23:44,960
So now I also noticed on your
TikTok videos that you are
477
00:23:44,960 --> 00:23:48,520
showing the accessible and
inaccessible items around your
478
00:23:48,520 --> 00:23:51,400
college campus, probably very
similar to your scavenger hunt
479
00:23:51,400 --> 00:23:54,000
that you had done.
I'm just curious because I know
480
00:23:54,000 --> 00:23:57,120
that you also did a video on a
hotel where the lift was
481
00:23:57,200 --> 00:24:00,480
inoperable and then, you know,
after several months, they gave
482
00:24:00,480 --> 00:24:04,040
you kind of a lame letter back
about like, oh, we're so sorry,
483
00:24:04,040 --> 00:24:04,960
kind of thing.
And.
484
00:24:04,960 --> 00:24:06,680
And that was pretty much it.
Wah wah.
485
00:24:07,520 --> 00:24:12,440
But but yeah, I'm curious, like,
have you gotten any surprising
486
00:24:12,440 --> 00:24:15,360
responses in terms of being able
to call out certain
487
00:24:15,360 --> 00:24:18,560
inaccessibilities?
Have there been some changes
488
00:24:18,560 --> 00:24:21,680
based upon, you know, you're
vocalizing that you've noticed
489
00:24:21,680 --> 00:24:23,960
something?
So usually when I know.
490
00:24:24,200 --> 00:24:26,000
Something's inaccessible at my
college.
491
00:24:26,000 --> 00:24:28,560
It's oftentimes a door.
Like that's almost always the
492
00:24:28,560 --> 00:24:30,800
thing.
And I'll have someone help me
493
00:24:30,800 --> 00:24:34,800
film a video of it to educate
just the broader world on
494
00:24:34,920 --> 00:24:36,760
accessibility.
And then I'll share that on my
495
00:24:36,760 --> 00:24:40,520
TikTok and my Instagram.
And then I go to the disability
496
00:24:40,520 --> 00:24:42,800
office and let them know that
it's broken.
497
00:24:42,880 --> 00:24:45,880
And then they submit a work
order and physical plan fixes
498
00:24:45,880 --> 00:24:48,040
it.
And that usually is very quick.
499
00:24:48,040 --> 00:24:49,440
It usually just takes a few
days.
500
00:24:49,480 --> 00:24:52,880
But most of the change at my
school hasn't come really from
501
00:24:52,880 --> 00:24:54,520
like me posting on.
Talk.
502
00:24:54,600 --> 00:24:57,640
It's more like I notice things.
I'll post them and then I also
503
00:24:57,640 --> 00:25:00,560
have to take the extra step to
e-mail them and let them know.
504
00:25:00,920 --> 00:25:03,360
Yeah, but they are really
responsive, which is great.
505
00:25:03,360 --> 00:25:06,400
I do just wish that that
responsibility didn't fall on
506
00:25:06,400 --> 00:25:09,960
students to report things.
I suggested to them that it
507
00:25:09,960 --> 00:25:13,480
would be nice if fiscal plant go
around like once a month and
508
00:25:13,480 --> 00:25:15,200
check the elevators and the
doors.
509
00:25:15,280 --> 00:25:18,200
And they said that they didn't
have the capacity to do that.
510
00:25:18,240 --> 00:25:20,640
But I wish that there was just
something where it wasn't.
511
00:25:20,680 --> 00:25:24,080
Always students having to report
things is broken because it.
512
00:25:24,200 --> 00:25:26,640
It's exhausting.
Like, I don't feel like doing it
513
00:25:26,640 --> 00:25:29,760
all the time, but once it's
reported, they do fix it, which
514
00:25:29,760 --> 00:25:31,800
is good.
HM yeah, I know.
515
00:25:31,800 --> 00:25:35,000
That's unfortunately the the
realities of life sometimes.
516
00:25:35,040 --> 00:25:36,080
That's sad.
Yeah.
517
00:25:36,080 --> 00:25:38,880
Hopefully with additional
attention maybe maybe there will
518
00:25:38,880 --> 00:25:42,000
be some other measures that can
be taken that are more proactive
519
00:25:42,240 --> 00:25:43,920
than.
Yeah, I would hope so.
520
00:25:43,920 --> 00:25:47,520
I mean, my disability club has
talked about maybe making like
521
00:25:47,760 --> 00:25:51,880
little signs for the accessible
door buttons that say to please
522
00:25:51,880 --> 00:25:54,040
press them gently because I feel
like they break.
523
00:25:54,200 --> 00:25:57,040
A lot when people smack them or
hit them with their feet and
524
00:25:57,040 --> 00:26:00,640
then we're going to put a QR
code that people could scan that
525
00:26:00,640 --> 00:26:04,040
will send them resources on how
they can report the button is
526
00:26:04,040 --> 00:26:06,440
broken.
So that's an idea that we had
527
00:26:06,440 --> 00:26:08,680
that we're going to see if we
can implement on campus.
528
00:26:08,680 --> 00:26:11,320
I haven't asked the disability
office about it yet, but I kind
529
00:26:11,320 --> 00:26:14,520
of want to get their input on if
that could be done, If we could
530
00:26:14,520 --> 00:26:16,880
go around and do that.
And if they say yes, then I
531
00:26:16,880 --> 00:26:19,400
think we'll go around and put up
those signs and that might make
532
00:26:19,400 --> 00:26:21,880
a difference, Yeah.
And it seems like the newer
533
00:26:21,880 --> 00:26:24,440
buildings are a little bit
better, you know, they the
534
00:26:24,440 --> 00:26:28,200
better quality equipment.
And they seem to have the ADA
535
00:26:28,200 --> 00:26:30,480
much more in mind.
Some of these universities with
536
00:26:30,560 --> 00:26:33,920
much older buildings, Oh boy,
it's treacherous going up some
537
00:26:34,080 --> 00:26:35,440
of this.
Hard.
538
00:26:35,520 --> 00:26:37,520
Yeah.
And some of the elevators are
539
00:26:37,520 --> 00:26:40,880
just really old and creaky.
And yeah, it's hard.
540
00:26:43,720 --> 00:26:46,520
All right, let's shift gears and
talk about something fun.
541
00:26:46,520 --> 00:26:48,640
Let's talk about clothes.
Gosh darn it.
542
00:26:48,680 --> 00:26:50,480
Let's talk about accessible
clothes.
543
00:26:50,480 --> 00:26:53,440
Now, I saw some videos where I
always give love to Zappos
544
00:26:53,440 --> 00:26:55,840
because they are one of my
favorite accessible places, as
545
00:26:55,840 --> 00:26:58,320
well as Hilfiger.
I always give love to Tommy
546
00:26:58,320 --> 00:27:00,960
Hilfiger for all the incredible
outfits.
547
00:27:00,960 --> 00:27:03,640
But do you have some favorites
or there's some favorite pieces
548
00:27:03,640 --> 00:27:05,960
that you have, some other
favorite brands that you have?
549
00:27:06,000 --> 00:27:07,560
I agree.
I love Zappos.
550
00:27:07,720 --> 00:27:09,920
They're my favorite.
Tommy Hilfiger is one of my
551
00:27:09,960 --> 00:27:12,120
favorites.
I've been posting some social
552
00:27:12,120 --> 00:27:14,400
media.
Zappos talking about their
553
00:27:14,400 --> 00:27:16,040
clothing.
The dress I'm wearing right now
554
00:27:16,040 --> 00:27:18,360
is from Zappos.
They just have like really good
555
00:27:18,360 --> 00:27:20,760
variety.
They have great kids clothes,
556
00:27:20,760 --> 00:27:23,840
which is awesome for me because
I tend to wear kids clothes
557
00:27:23,840 --> 00:27:27,600
because they fit me the best.
So I love Zappos and it's nice
558
00:27:27,600 --> 00:27:30,800
to see companies thinking about
disabled people and being
559
00:27:30,800 --> 00:27:33,680
innovative in design.
And what really helps me is
560
00:27:33,680 --> 00:27:36,720
finding clothing that doesn't
have buttons and zippers because
561
00:27:36,760 --> 00:27:41,120
I can't do those independently.
So finding clothing that maybe
562
00:27:41,120 --> 00:27:44,720
just has like a stretchier.
Neck so I can like easily put it
563
00:27:44,720 --> 00:27:48,760
on and take it off on finding
things like elastic waistbands
564
00:27:48,760 --> 00:27:51,760
that's easy to pull up and down.
I found some great shoes from
565
00:27:51,760 --> 00:27:55,200
Zappos that look like they have
laces but they're slip on shoes.
566
00:27:55,200 --> 00:27:58,640
So I get like the style like and
the look that I want but the
567
00:27:58,640 --> 00:28:00,640
function is there which is
amazing.
568
00:28:00,640 --> 00:28:03,440
So those are like some of my
favorite things to look or and
569
00:28:03,440 --> 00:28:06,440
especially to dresses and tank
tops that have like adjustable
570
00:28:06,440 --> 00:28:12,480
straps is so nice because I'm so
small and it's just so hard so.
571
00:28:12,680 --> 00:28:15,280
Yeah, I love Zappos.
I love Tommy Hilfiger.
572
00:28:15,280 --> 00:28:19,000
JC Penney has some stuff too.
I just posted some social media
573
00:28:19,000 --> 00:28:21,360
ads for them as well.
And so, yeah, it's really nice
574
00:28:21,360 --> 00:28:24,400
seeing these companies caring
about disability and making
575
00:28:24,400 --> 00:28:26,920
their items inclusive.
Yeah, awesome.
576
00:28:26,920 --> 00:28:30,400
Yeah, we've been pretty loyal to
this brand called Billy that
577
00:28:30,400 --> 00:28:34,120
makes these great shoes that you
can like, zip around.
578
00:28:34,120 --> 00:28:37,720
And I think that my son has them
in like 5 or 6 different colors.
579
00:28:38,560 --> 00:28:40,240
I've heard of those.
I've heard they're great.
580
00:28:40,240 --> 00:28:42,560
They're really great for kids
that are wearing AFO.
581
00:28:42,680 --> 00:28:46,320
Those or those that don't have
the ability, to your point, LASA
582
00:28:46,320 --> 00:28:49,680
or even, you know, do Velcro.
These are just so easy to just
583
00:28:49,680 --> 00:28:53,680
zip around the tongue and get on
and off with with no trouble at
584
00:28:53,680 --> 00:28:55,040
all.
Those are fabulous.
585
00:28:55,440 --> 00:28:58,160
Yes, I love shoes.
Like, shoes are so hard.
586
00:28:58,200 --> 00:29:00,520
So finding shoes they're easy to
do is amazing.
587
00:29:00,600 --> 00:29:03,280
Yeah, for sure.
And walking around campus too,
588
00:29:03,280 --> 00:29:05,320
you want to make sure that
they're comfortable as well.
589
00:29:05,360 --> 00:29:07,560
Yes, yes.
And my favorite shoes right now
590
00:29:07,560 --> 00:29:10,760
are my ones from Zappos that are
just like slip ONS, but they
591
00:29:10,760 --> 00:29:13,440
look like shoes with laces.
Love that.
592
00:29:14,080 --> 00:29:15,760
So ingenious.
Yeah.
593
00:29:15,880 --> 00:29:19,360
So tell me, like, if there is a
day that is particularly tough
594
00:29:19,360 --> 00:29:21,920
and you're feeling like, who?
I'm just curious, Like, I mean,
595
00:29:21,920 --> 00:29:24,040
we went through COVID.
There must have been some pretty
596
00:29:24,040 --> 00:29:25,800
tough days.
But you know, is there anything
597
00:29:25,800 --> 00:29:28,680
that you do or that you've got a
routine that helps to kind of
598
00:29:28,680 --> 00:29:31,440
lift you out of that?
I mean, it sounds unrealistic,
599
00:29:31,440 --> 00:29:34,160
but I'm honestly like hardly
ever in a bad mood.
600
00:29:34,160 --> 00:29:37,960
Like it happens so infrequently.
I mean there are sometimes where
601
00:29:37,960 --> 00:29:40,520
like it typically happens if I'm
like walking to class and I'm
602
00:29:40,520 --> 00:29:42,240
just like thinking while I'm
walking.
603
00:29:42,680 --> 00:29:45,400
Or maybe sometimes where I'm
like wishing that whatever I'm
604
00:29:45,400 --> 00:29:48,240
wearing, like, fit me better.
And because a lot of the time my
605
00:29:48,240 --> 00:29:51,480
clothes don't fit me well
because my arms have a lot of
606
00:29:51,480 --> 00:29:54,480
muscle atrophy.
And so I know that if I didn't
607
00:29:54,480 --> 00:29:57,000
have a disability, stuff would
fit me better and I would look
608
00:29:57,000 --> 00:29:59,720
better in certain things.
So sometimes I get down about
609
00:29:59,720 --> 00:30:02,200
that, but not really in an
insecure way, more so just in an
610
00:30:02,200 --> 00:30:04,080
annoyed way.
So that's something I might get
611
00:30:04,080 --> 00:30:06,040
frustrated with.
Or if I need help with
612
00:30:06,040 --> 00:30:08,040
something.
And on the odd chance that
613
00:30:08,040 --> 00:30:11,120
someone's not around, that can
be annoying, but I usually just
614
00:30:11,120 --> 00:30:12,600
have to wait a bit and then
someone can.
615
00:30:12,680 --> 00:30:13,680
Income help.
I don't know.
616
00:30:13,680 --> 00:30:16,160
I mean, sometimes I just like,
have the thought and I let
617
00:30:16,160 --> 00:30:19,000
myself have the thought and then
just in kind of like, you know,
618
00:30:19,000 --> 00:30:22,000
it's OK Like I'm hardly ever
upset about anything.
619
00:30:22,000 --> 00:30:25,160
And so when I am, I let myself
think it and don't like, try to
620
00:30:25,160 --> 00:30:26,960
make myself not think those
things.
621
00:30:27,040 --> 00:30:29,440
That's incredible.
And so you've always been just
622
00:30:29,520 --> 00:30:32,240
naturally upbeat, happy, high
vibe.
623
00:30:32,240 --> 00:30:34,360
It's.
Not, yeah, like I said, you.
624
00:30:34,400 --> 00:30:38,360
Do it sounds unrealistic, but I
mean, yeah, I really am like
625
00:30:38,360 --> 00:30:41,880
hardly ever upset.
And like, if I am, it's usually
626
00:30:41,880 --> 00:30:47,240
not disability.
Related SO do you have any
627
00:30:47,240 --> 00:30:51,840
favorite mottos or quotes that
you like to think about during
628
00:30:51,880 --> 00:30:55,320
the day?
Yes, I actually have one on my
629
00:30:55,320 --> 00:30:57,080
desk, and this was my senior
quote.
630
00:30:57,600 --> 00:31:01,800
It's painted on the Berlin Wall.
And so my mom and I took a trip
631
00:31:01,800 --> 00:31:04,800
to Germany three years ago and
looked at all the art on the
632
00:31:04,800 --> 00:31:07,520
remains of the Berlin Wall.
And there was this one quote
633
00:31:07,520 --> 00:31:11,280
that says many small people who
in many small places do many
634
00:31:11,280 --> 00:31:13,520
small things that can alter the.
Face of the world.
635
00:31:13,600 --> 00:31:16,560
And I loved that quote.
I liked how it was written.
636
00:31:16,560 --> 00:31:19,200
I thought that was very unique
and it stood out to me.
637
00:31:19,200 --> 00:31:21,800
And I feel like, I like how it
can be applied to so many
638
00:31:21,800 --> 00:31:24,400
different things.
It could be applied, um, to what
639
00:31:24,400 --> 00:31:27,440
I'm doing, which I like about
that, but it can be applied like
640
00:31:27,440 --> 00:31:30,400
to the history, like it was on
the Berlin Wall, which I thought
641
00:31:30,400 --> 00:31:33,400
was very interesting.
So I really love that quote.
642
00:31:33,480 --> 00:31:36,400
And then another one I really
love is something like going
643
00:31:36,400 --> 00:31:39,160
through things you never thought
you go through will take you
644
00:31:39,160 --> 00:31:41,200
places you never thought you'd
go to.
645
00:31:41,280 --> 00:31:42,560
Or something like that.
Just so.
646
00:31:42,680 --> 00:31:44,280
True.
For my life, I'm doing things
647
00:31:44,280 --> 00:31:47,840
that I never would have done if
I hadn't become disabled.
648
00:31:47,840 --> 00:31:50,240
And I think that's one of the
most beautiful things about
649
00:31:50,280 --> 00:31:53,880
disability is you really do end
up having all these cool
650
00:31:53,880 --> 00:31:56,400
experiences.
You learn amazing things that
651
00:31:56,400 --> 00:31:59,080
you never would have learned if
you didn't become part of this
652
00:31:59,080 --> 00:32:01,480
community.
So those are two of my absolute
653
00:32:01,520 --> 00:32:03,040
favorite quotes.
I love that.
654
00:32:03,040 --> 00:32:06,320
And I love that you're able to
see disability as a gift.
655
00:32:06,320 --> 00:32:09,280
I see it that way, too.
I look at, you know, my son has
656
00:32:09,280 --> 00:32:12,480
introduced me to a whole world
of special needs children and a
657
00:32:12,480 --> 00:32:14,880
whole special needs population.
And I'm like, it's such a gift
658
00:32:14,880 --> 00:32:18,520
to be able to know what it's
like and to just feel this
659
00:32:18,520 --> 00:32:22,640
unabashed love and kindness that
comes from being, you know, part
660
00:32:22,640 --> 00:32:25,120
of the community.
And I really feel that, like, I
661
00:32:25,120 --> 00:32:27,720
feel so grateful for it.
I feel really like blessed.
662
00:32:27,720 --> 00:32:30,840
And I'm like, wow, He chose me
as his Mama.
663
00:32:30,840 --> 00:32:34,160
I couldn't be happier to be, you
know, the mom of this special
664
00:32:34,160 --> 00:32:35,400
boy.
What do you think that you're
665
00:32:35,400 --> 00:32:38,280
most thankful for?
That's such a hard question.
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00:32:38,280 --> 00:32:42,160
I mean, I'm most thankful for my
mom because she's like my best
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00:32:42,160 --> 00:32:44,040
friend.
I always tell her I'm like, I
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00:32:44,040 --> 00:32:45,720
will never love anyone more than
you.
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00:32:45,720 --> 00:32:47,200
And she's like, yes, you will,
one day you will.
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00:32:47,200 --> 00:32:51,280
And I'm like, no, never is she
most thankful for her.
671
00:32:51,320 --> 00:32:53,760
And then I guess just right now,
in terms of my life, I'm so
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00:32:53,760 --> 00:32:57,040
thankful to be at college
because I always knew I would be
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00:32:57,040 --> 00:33:00,280
able to go, but I didn't know
how it would really work.
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00:33:00,280 --> 00:33:03,080
And I knew I would figure it
out, but I just didn't really
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00:33:03,080 --> 00:33:06,040
know what it would look like.
And so I'm really thankful to be
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00:33:06,120 --> 00:33:09,520
at the college that I'm at.
But also you're independently
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00:33:09,600 --> 00:33:11,800
and there's sometimes where I'm
like walking around campus and
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00:33:11,800 --> 00:33:13,880
I'm just thinking.
About how thankful I am that I'm
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00:33:13,880 --> 00:33:16,200
here.
So I would say yes, my mom in
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00:33:16,200 --> 00:33:18,600
terms of people and then college
right now.
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00:33:18,600 --> 00:33:22,480
Wow, such great things and such
a great person to be thankful
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00:33:22,480 --> 00:33:24,760
for.
Sarah Todd, thank you for being
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00:33:24,760 --> 00:33:27,240
you and I appreciate you being
on the show today.
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00:33:27,360 --> 00:33:30,120
Thank you for having me.
This has been a fabulous
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00:33:30,120 --> 00:33:31,000
conversation.

















